We’re constantly inspired by the incredible families who not only navigate the challenges of their journey but also share their stories, support, and kindness to uplift others.Families like The Hogan Family, who chose Hope for HIE for this year’s My Cause My Cleats initiative, show just how powerful community and connection can be. Their commitment to spreading awareness and giving […]
Today, on Giving Tuesday, we come together as a global community to make a difference—and there’s no better time to give hope to families navigating the uncertain journey of Hypoxic-Ischemic Encephalopathy (HIE). Every day, babies are born into the world under extraordinary circumstances, with their parents facing life-altering news. As the Executive Director of Hope for HIE—and as a parent who has […]
We don’t know about you, but we think it’s time to recognize, celebrate, and empower the unsung HIEroes of the HIE community — the brothers and sisters who stand strong alongside their HIE siblings and those they remember who have passed. Sometimes, our Super Sibs can bear a significant load: they are asked to take on a lot, go forth […]
Hypoxic-Ischemic Encephalopathy (HIE) is a type of brain injury that occurs when a newborn’s brain doesn’t receive enough oxygen and blood flow at or around the time of birth. This lack of oxygen can lead to long-term impacts, especially in how the brain develops and functions. Among the most challenging complications for children with HIE are certain types of epilepsy […]
We’ve said it before, and we’ll say it again: the Neonatal Seizure Registry (NSR) is the gold standard for integrating parental input at every step—from study design all the way to its dissemination. Two incredible members of the NSR team—Dr. Monica Lemmon, a pediatric neurologist at Duke Health and a valued member of Hope’s Medical Advisory Board, and Natalie Field, […]
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