Hypoxic-Ischemic Encephalopathy (HIE) is a brain injury resulting from a lack of oxygen and blood flow, often during birth. Children with HIE face various challenges depending on the severity and extent of the injury, with epilepsy being one of the most common long-term conditions associated with HIE. Epilepsy, a neurological disorder that leads to recurrent seizures, can range in severity […]
As the saying goes, “It takes a village,” and at Hope, we have a strong one. Every month, our HIE Peer Perspective series brings together committed members of the HIE community to share their valuable insights into the diverse impacts and outcomes of HIE, offering firsthand experiences and guidance on navigating its various challenges.In our latest session, devoted dads from […]
Navigating Life with HIE and Epilepsy: Building Your Care Team Living with hypoxic-ischemic encephalopathy (HIE) and epilepsy can feel overwhelming, both for the individuals affected and their families. These conditions present unique challenges and often require a broad, skilled care team to ensure that the individual gets comprehensive support. In this post, we’ll outline key care team members who can […]
Genetic research in HIE is still in its early stages, but it’s opening the door to potentially transformative advances in both prenatal and postnatal care. And while it may not have all of the answers yet, its insights are building a foundation for supporting HIE families in the future – potentially offering explanations, guiding care, and paving the way for […]
In the world of Hope for HIE, we believe in the power of community, the strength of unity, and the unwavering resilience of families navigating the challenges of neonatal and pediatric-acquired HIE. And what better way to embody these principles than becoming a 2025 Hustle for Hope 5K Host? We’ve witnessed the profound impact of our 5K fundraiser on our […]
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