Every day, we face questions and search for answers that will help us on our HIE journey. Whether you're new to HIE, or a seasoned veteran, our resource area is a great place to find helpful information.
Here, you'll find tools, links to resources and maybe even a few tips/tricks to make life easier. All of our content is gathered, written and developed by other HIE parents and family members, with the backing and review of the Medical Advisory Board to ensure accurate, evidence-based information is shared.
You don't have to navigate this alone. Hope for HIE's comprehensive support programs and services include professional staff and trained volunteers offering multiple options for support. Professional support, peer support, and mentorship are all available free of charge through Hope for HIE.
Posts are updated regularly across several areas of focus including family stories, research updates, support, social work, child life, and diagnosis-specific resources.
Browse by Topic: What families search for most
Want to tell us your story? E-mail our Communications Manager, Jacquelline Garborg.
Handouts, flyers and contact cards you can download and print out, share, email and learn more about HIE, the brain, different topics and more.
We've worked to bring together a comprehensive hub to learn more about participating in clinical trials and research studies, active trials, and the latest research.
Hope for HIE has an extensive video library hosted on YouTube of medical, research, child life, peer perspective and other educational content. Hope for HIE's Just Say HIE podcast has two seasons of past podcast episodes to listen to. Be sure to keep in touch for the launch of season 3.
One of the highlights of the global HIE community connecting is the information share. From "parent hacks" to recommended developmental tools and toys, to highlighting community authors, our Amazon storefront has something for everyone.
These resources linked do not constitute an endorsement by Hope for HIE, and the views expressed by authors are their own, and do not necessarily represent the mission, vision, and values of the organization.
We accept submissions for various resource listings on our Amazon storefront, and the resource lists that are maintained by our support staff.
Submissions will go through a review process to ensure they meet the criteria of Hope for HIE's Community Trust & Affiliation Policy. Approved listings do not constitute endorsement from the organization, and author and community views are that of the individual authors and contributors, not necessarily of the organization.
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