As the saying goes, “It takes a village,” and at Hope, we have a strong one. Every month, our HIE Peer Perspective series brings together committed members of the HIE community to share their valuable insights into the diverse impacts and outcomes of HIE, offering firsthand experiences and guidance on navigating its various challenges. Our latest session focused on navigating […]
Receiving a diagnosis of neonatal hypoxic-ischemic encephalopathy (HIE) can be overwhelming for any family, and learning that your child may be at risk for secondary microcephaly can add to those concerns. To help navigate these concerns, we’ve compiled answers to some frequently asked questions (FAQs) to provide clarity, hope, and resources for HIE families. 1. What is secondary microcephaly? Secondary […]
We know that Augmentative and Alternative Communication (AAC) is about giving every child a voice and a way to connect with the world around them. We know that understanding the different elements of AAC can make a big difference in how we support and empower communication for those who need it. And we know that there’s a lot to learn, […]
Recently, many areas in the United States have experienced significant natural disasters displacing and impacting families. We are in close contact with many of our HIE families in impacted regions, and are always here to connect and support families facing situations in the wake of natural disasters, including dedicated social work, child life and peer support, as well as the […]
Did you know there are currently ZERO published long-term follow up guidelines for neonatal and pediatric-acquired Hypoxic Ischemic Encephalopathy? That’s about to change. Members of Hope for HIE’s Medical Advisory Board, and the greater neonatology and pediatric neurology community are coming together to tackle this lack of important care for HIE. First, we need to know what care looks like […]
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