Hope for HIE – Hypoxic Ischemic Encephalopathy Hope for HIE – Hypoxic Ischemic Encephalopathy

BLOG

HIE and Neonatal Seizures

HIE and Neonatal Seizures

November 4th, 2024  | Epilepsy  | News

Hypoxic-ischemic encephalopathy (HIE) is a critical condition in newborns resulting from reduced oxygen or blood flow to the brain. This shortage can lead to brain injury, with a range of outcomes depending on severity, timing, and the interventions available. One of the major complications associated with HIE is neonatal seizures, which can contribute significantly to long-term outcomes for affected infants. […]

Breaking down Epilepsy from A to Z

Breaking down Epilepsy from A to Z

November 2nd, 2024  | Epilepsy  | News  | Resources

When it comes to epilepsy, we know there’s a lot to take in. It’s normal to feel overwhelmed by all of the terms and information, from understanding the different types of seizures to learning about treatments and unique considerations for children. So, whether you’re just beginning your epilepsy journey or looking to build your knowledge, here’s an A-Z breakdown of […]

What is the HIE Registry all about?

What is the HIE Registry all about?

October 31st, 2024  | HIE Registry Updates  | News  | Research

You may have seen the news that Hope for HIE, Cerebral Palsy Research Network, and the Newborn Brain Society announced a collaboration and grant funding to build a patient-family research registry for neonatal and pediatric-acquired Hypoxic Ischemic Encephalopathy. You may be asking yourself “What does this mean to my child and family with HIE?” You’ve got questions, we’ve got answers! […]

HIE Registry Project Receives $100,000 Grant Funding

HIE Registry Project Receives $100,000 Grant Funding

October 31st, 2024  | Advocacy  | HIE Registry Updates  | News  | Research

PEDIATRIC NEUROLOGY ORGANIZATIONS PARTNER, RECEIVE FUNDING TO BUILD REGISTRY FOR NEONATAL HYPOXIC ISCHEMIC ENCEPHALOPATHY  Cerebral Palsy Research Network, Hope for HIE and Newborn Brain Society announce a partnership and receipt of funding to develop a patient registry for neonatal hypoxic ischemic encephalopathy (HIE). Investigators Danielle Guez Barber, MD, PhD, neonatal neurologist at Colorado Children’s Hospital, and Zach Vesoulis, MD, neonatologist […]

Fostering Peer Relationships: Child Life Q&A Key Takeaways

Fostering Peer Relationships: Child Life Q&A Key Takeaways

October 30th, 2024  | Child Life Resources  | News  | Resources

We all know that friendships can be tough to navigate, and for children within our Hope community, there are often more challenges to consider: differences in communication styles, physical abilities, sensory sensitivities, or emotional regulation can all influence how they (and their siblings) connect with their peers. So, how can parents and caregivers help their children build meaningful friendships in […]

SHARE YOUR HIE STORY

One of the ways many HIE families work through the trauma of their journey is sharing their story to help other families who will find us in their own HIE journey. We hope you’ll take a few minutes and share yours with us. We’ll publish it to our Family Stories blog!

Share Your Story

SIGNUP

Connect with families, read inspiring stories, and get helpful resources delivered right to your inbox.

  • This field is for validation purposes and should be left unchanged.