The HIE Registry — a combined effort between Hope for HIE, the Cerebral Palsy Research Network (CPRN), and the Newborn Brain Society (NBS) — has been awarded a three-year grant from the Pediatric Epilepsy Research Foundation (PERF) to expand what it can do. For our community, that means better data, better research, and better answers. Why it matters HIE has […]
When a baby is diagnosed with hypoxic-ischemic encephalopathy (HIE), families and medical teams enter one of the most intense experiences of their lives. Every monitor, every scan, every decision carries enormous weight. And then, eventually, discharge day comes — and for most families, the sustained attention of the medical world quietly moves on. For researchers and clinicians, there’s a parallel […]
We are thrilled to share an exciting milestone for our community: the HIE Community Research Registry has officially enrolled its very first family at Colorado Children’s Hospital. This marks the beginning of a groundbreaking effort to better understand the long-term impacts of Hypoxic-Ischemic Encephalopathy (HIE), improve care, and drive innovation in research. For too long, families impacted by HIE have […]
You may have seen the news that Hope for HIE, Cerebral Palsy Research Network, and the Newborn Brain Society announced a collaboration and grant funding to build a patient-family research registry for neonatal and pediatric-acquired Hypoxic Ischemic Encephalopathy. You may be asking yourself “What does this mean to my child and family with HIE?” You’ve got questions, we’ve got answers! […]
PEDIATRIC NEUROLOGY ORGANIZATIONS PARTNER, RECEIVE FUNDING TO BUILD REGISTRY FOR NEONATAL HYPOXIC ISCHEMIC ENCEPHALOPATHY Cerebral Palsy Research Network, Hope for HIE and Newborn Brain Society announce a partnership and receipt of funding to develop a patient registry for neonatal hypoxic ischemic encephalopathy (HIE). Investigators Danielle Guez Barber, MD, PhD, neonatal neurologist at Colorado Children’s Hospital, and Zach Vesoulis, MD, neonatologist […]
Connect with families, read inspiring stories, and get helpful resources delivered right to your inbox.
Connect with families, read inspiring stories, and get helpful resources delivered right to your inbox.
