Medical care, therapy, and school services come with a lot of unfamiliar words. Joining the HIE community often feels like learning a whole new language. This guide explains terms you may hear as you navigate life with HIE.
Some abbreviations have more than one meaning. Terms also vary by country, hospital, and school system. If something is unclear, ask: “What does that mean for my child?”
Listing a treatment or approach here explains its name. It does not mean Hope for HIE recommends it or that research supports its use.
You do not need to memorize these terms to take part in your child’s care.
Ask your care team or school team to explain unfamiliar words, write down important information, and describe what it means for your child and family.
| Short form | Full term | What it means |
|---|---|---|
| HIE | Hypoxic ischemic encephalopathy | A brain injury caused by not enough oxygen and blood flow to the brain. |
| NE | Neonatal encephalopathy | A newborn’s brain is not working as expected. HIE is one possible cause. |
| ABI | Acquired brain injury | Brain injury acquired after birth. This can include pediatric-acquired HIE. |
| TBI | Traumatic brain injury | Brain injury caused by an outside force, such as a blow to the head. It is different from an injury caused by a lack of oxygen and blood flow. |
| CP | Cerebral palsy | A group of conditions affecting movement and posture due to injury or differences in the developing brain. |
| SQCP | Spastic quadriplegic cerebral palsy | A type of cerebral palsy involving muscle stiffness and movement difficulties in all four limbs. |
| IS | Infantile spasms | A type of seizure that usually begins in infancy and needs urgent medical assessment. |
| CVI | Cerebral or cortical visual impairment | Vision difficulties caused by how the brain processes visual information. |
| DVM | Delayed visual maturation | A delay in the development of visual responses in an infant. |
| GDD | Global developmental delay | Delays in two or more areas of development in a young child. |
| ID | Intellectual disability | Differences in intellectual functioning and everyday skills that begin during development. |
| LD | Learning disability | A term that varies by country. In the U.S., it generally refers to difficulties with specific learning skills, such as reading or math. |
| ADHD | Attention-deficit/hyperactivity disorder | A condition affecting attention, activity levels, and impulse control. |
| ASD | Autism spectrum disorder | A developmental condition involving differences in social communication, behavior, and sensory experiences. |
| AS | Asperger’s syndrome | An older diagnostic term now generally included within autism spectrum disorder. Some people still use it to describe themselves. |
| SPD | Sensory processing disorder | A term used to describe difficulty responding to or making sense of sensory information. Its use varies among providers. |
| GERD | Gastroesophageal reflux disease | Stomach contents flowing back into the esophagus and causing symptoms or complications. |
| PFD | Pediatric feeding disorder | Feeding difficulties involving health, nutrition, feeding skills, or emotional and social factors. |
| Short form | Full term | What it means |
|---|---|---|
| MRI | Magnetic resonance imaging | A scan that takes detailed pictures of the brain or other parts of the body. |
| EEG | Electroencephalogram | A test that records the brain’s electrical activity. |
| cEEG | Continuous electroencephalogram | Records brain activity over time, including to check for seizures. |
| aEEG | Amplitude-integrated electroencephalogram | A simplified display of brain activity used for monitoring. |
| vEEG | Video electroencephalogram | Records video and brain activity together to help assess events that may be seizures. |
| HINE | Hammersmith Infant Neurological Examination | A structured exam of a baby’s movements and nervous system. |
| GMA | General Movements Assessment | An assessment of a young baby’s spontaneous movements. |
| GMFCS | Gross Motor Function Classification System | Describes how a person with cerebral palsy moves, including mobility support needs. |
| VFSS | Videofluoroscopic swallow study | An X-ray study showing how food and liquid move during swallowing. |
| MBS / MBSS | Modified barium swallow / modified barium swallow study | Another name commonly used for a videofluoroscopic swallow study. |
| FEES | Flexible endoscopic evaluation of swallowing | A swallowing assessment using a small camera passed through the nose. |
| Short form | Full term | What it means |
|---|---|---|
| NICU | Neonatal intensive care unit | A hospital unit providing intensive care for newborns. |
| PICU | Pediatric intensive care unit | A hospital unit providing intensive care for infants and children. |
| SCBU | Special care baby unit | A unit caring for newborns who need extra support. Used in some countries; it may provide a different level of care from a NICU. |
| TH | Therapeutic hypothermia | Carefully controlled cooling treatment for eligible newborns with HIE. |
| ASM | Antiseizure medication | Medicine used to treat seizures. |
| AED | Antiepileptic drug | Another term for seizure medicine. ASM is increasingly used instead. |
| CPR | Cardiopulmonary resuscitation | Emergency care to support circulation and breathing when the heart stops. |
| NPO | Nil per os | Nothing by mouth. The care team will explain how nutrition, fluids, and medicines will be given. |
| Short form | Full term | What it means |
|---|---|---|
| Ped / Peds | Pediatrician / pediatrics | A doctor, or area of medicine, focused on children’s health. |
| Neuro | Neurologist / neurology | A specialist, or area of medicine, focused on the brain and nervous system. |
| Ortho | Orthopedist / orthopedics | A specialist, or area of medicine, focused on bones, joints, and related movement concerns. |
| GI | Gastroenterologist / gastroenterology | A specialist, or area of medicine, focused on the digestive system. |
| PM&R / PMR | Physical medicine and rehabilitation | Medical care focused on function, comfort, and participation. A doctor in this specialty is called a physiatrist. |
| SLP | Speech-language pathologist | A professional who supports communication and swallowing. |
| SALT / SLT | Speech and language therapist / therapy | Terms used in some countries for the professional or services supporting communication and swallowing. |
| Short form | Full term | What it means |
|---|---|---|
| PT | Physical therapy / physiotherapy | Supports movement, mobility, strength, and participation in activities. |
| OT | Occupational therapy | Supports everyday activities, such as play, dressing, eating, and school tasks. |
| ST | Speech therapy | Supports speech, language, and communication. Some providers also address swallowing. |
| ADL / ADLs | Activities of daily living | Everyday tasks such as eating, dressing, bathing, and using the bathroom. |
| NDT | Neurodevelopmental treatment | A rehabilitation approach families may hear about. Ask about evidence for the specific techniques and goals being proposed. |
| ABM | Anat Baniel Method | A branded movement-based approach. Its inclusion here does not establish that it is effective for HIE. |
| MNRI | Masgutova Neurosensorimotor Reflex Integration | A branded approach focused on reflexes. Its inclusion here does not establish that it is effective for HIE. |
| Short form | Full term | What it means |
|---|---|---|
| AAC | Augmentative and alternative communication | Ways to support or replace speech, including gestures, pictures, communication boards, and devices. |
| AT | Assistive technology | Tools, equipment, or software that help someone communicate, learn, move, or complete activities. |
| DME | Durable medical equipment | Reusable medical equipment, such as wheelchairs, walkers, and some home medical devices. |
An orthosis is a brace or support. The plural is orthoses.
| Short form | Full term | What it means |
|---|---|---|
| AFO | Ankle-foot orthosis | A brace supporting the ankle and foot. |
| SMO | Supramalleolar orthosis | A shorter brace that supports the foot and extends just above the ankle bones. |
| KAFO | Knee-ankle-foot orthosis | A brace supporting the knee, ankle, and foot. |
| TLSO | Thoracolumbosacral orthosis | A brace supporting the trunk and spine. |
| SWASH | Sitting, Walking And Standing Hip orthosis | A hip brace designed to support positioning during sitting, standing, and walking. |
| CI | Cochlear implant | A device that provides access to sound for some people with hearing loss. |
| Short form | Full term | What it means |
|---|---|---|
| NG / NGT | Nasogastric tube | A feeding tube that passes through the nose into the stomach. |
| NJ tube | Nasojejunal tube | A feeding tube that passes through the nose into the small intestine. |
| G-tube | Gastrostomy tube | A feeding tube placed through the abdomen into the stomach. |
| GJ tube | Gastrojejunostomy tube | A feeding tube with access to the stomach and small intestine. |
| PEG | Percutaneous endoscopic gastrostomy | A procedure used to place a gastrostomy tube with the help of an endoscope. The tube may also be called a PEG tube. |
| Fundo | Fundoplication, often Nissen fundoplication | An informal name for surgery used to reduce reflux by wrapping part of the stomach around the lower esophagus. |
| Short form | Full term | What it means |
|---|---|---|
| SDR | Selective dorsal rhizotomy | Surgery that cuts selected sensory nerve fibers to reduce spasticity, or muscle stiffness. |
| SPML | Selective percutaneous myofascial lengthening | A procedure intended to release tight tissue around selected muscles through small openings in the skin. |
These terms mainly describe U.S. services. Eligibility rules and names vary by location.
| Short form | Full term | What it means |
|---|---|---|
| EI | Early intervention | Services supporting infants and toddlers with developmental delays or disabilities and their families. |
| IDEA | Individuals with Disabilities Education Act | The U.S. law governing early intervention and special education services for eligible children. |
| IFSP | Individualized Family Service Plan | A written plan for an infant or toddler’s early intervention services and family support. |
| IEP | Individualized Education Program | A written plan describing an eligible student’s special education, services, and goals. |
| 504 plan | Section 504 plan | A plan providing accommodations and access for an eligible student with a disability. |
| ECSE | Early childhood special education | Special education services for eligible young children, generally beginning at age three. |
| FAPE | Free appropriate public education | An eligible student’s right to an appropriate public education at no cost to their family. |
| LRE | Least restrictive environment | Educating students with disabilities alongside students without disabilities to the greatest extent appropriate. |
| ESY | Extended school year | Special education services beyond the regular school year for eligible students. |
| ESD | Extended school day | A longer school day or additional services beyond usual school hours. Use varies locally. |
| TC | Teacher consultant | A specialist teacher who supports students and school staff. The role varies by location. |
| FBA | Functional behavioral assessment | An assessment of what contributes to a behavior and what support may help. |
| BIP | Behavior intervention plan | A plan describing supports and strategies for a student’s behavior and participation. |
Schools may use these terms when deciding eligibility for services. An educational category is not always the same as a medical diagnosis.
| Short form | Full term | What it means |
|---|---|---|
| PI | Physical impairment | A school category used in some locations for disabilities affecting physical function. |
| OHI | Other health impairment | A school eligibility category for certain health conditions that affect a student’s educational performance. |
| D/HH | Deaf or hard of hearing | Terms describing hearing differences and used by some school programs. |
| HI | Hearing impairment | A term used in some education rules and records. People may prefer “deaf” or “hard of hearing.” |
| DB | Deaf-blindness | Combined hearing and vision disabilities that create specific communication and access needs. |
| ECDD | Early childhood developmental delay | A school eligibility term used in some locations for young children with developmental delays. |
| EI | Emotional impairment | A school eligibility category used in Michigan. Here, EI has a different meaning from early intervention. |
| SXI | Severe multiple impairments | A Michigan school eligibility category involving multiple disabilities. |
| SLI | Speech and language impairment | A school eligibility category involving speech or language difficulties. |
| VI | Visual impairment | A school eligibility category involving vision disabilities. |
| CI | Cognitive impairment | A school eligibility category used in Michigan. Here, CI has a different meaning from cochlear implant. |
| TBI | Traumatic brain injury | A school eligibility category for injury caused by an external physical force. HIE may qualify under a different category. |
| Short form | Full term | What it means |
|---|---|---|
| NT | Neurotypical | A term generally used for people without neurodevelopmental differences. Its meaning depends on context. |
| SN | Special needs | A broad term sometimes used for disability-related needs. Many people prefer “disabled,” “disability,” or a description of the specific support needed. |
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