Hope for HIE – Hypoxic Ischemic Encephalopathy Hope for HIE – Hypoxic Ischemic Encephalopathy

Common HIE Terms and Acronyms

Medical care, therapy, and school services come with a lot of unfamiliar words. Joining the HIE community often feels like learning a whole new language. This guide explains terms you may hear as you navigate life with HIE.

Some abbreviations have more than one meaning. Terms also vary by country, hospital, and school system. If something is unclear, ask: “What does that mean for my child?”

Listing a treatment or approach here explains its name. It does not mean Hope for HIE recommends it or that research supports its use.

You do not need to memorize these terms to take part in your child’s care.

Ask your care team or school team to explain unfamiliar words, write down important information, and describe what it means for your child and family.

Diagnoses and Conditions
Short formFull termWhat it means
HIEHypoxic ischemic encephalopathyA brain injury caused by not enough oxygen and blood flow to the brain.
NENeonatal encephalopathyA newborn’s brain is not working as expected. HIE is one possible cause.
ABIAcquired brain injuryBrain injury acquired after birth. This can include pediatric-acquired HIE.
TBITraumatic brain injuryBrain injury caused by an outside force, such as a blow to the head. It is different from an injury caused by a lack of oxygen and blood flow.
CPCerebral palsyA group of conditions affecting movement and posture due to injury or differences in the developing brain.
SQCPSpastic quadriplegic cerebral palsyA type of cerebral palsy involving muscle stiffness and movement difficulties in all four limbs.
ISInfantile spasmsA type of seizure that usually begins in infancy and needs urgent medical assessment.
CVICerebral or cortical visual impairmentVision difficulties caused by how the brain processes visual information.
DVMDelayed visual maturationA delay in the development of visual responses in an infant.
GDDGlobal developmental delayDelays in two or more areas of development in a young child.
IDIntellectual disabilityDifferences in intellectual functioning and everyday skills that begin during development.
LDLearning disabilityA term that varies by country. In the U.S., it generally refers to difficulties with specific learning skills, such as reading or math.
ADHDAttention-deficit/hyperactivity disorderA condition affecting attention, activity levels, and impulse control.
ASDAutism spectrum disorderA developmental condition involving differences in social communication, behavior, and sensory experiences.
ASAsperger’s syndromeAn older diagnostic term now generally included within autism spectrum disorder. Some people still use it to describe themselves.
SPDSensory processing disorderA term used to describe difficulty responding to or making sense of sensory information. Its use varies among providers.
GERDGastroesophageal reflux diseaseStomach contents flowing back into the esophagus and causing symptoms or complications.
PFDPediatric feeding disorderFeeding difficulties involving health, nutrition, feeding skills, or emotional and social factors.
Tests, Monitoring and Assessments
Short formFull termWhat it means
MRIMagnetic resonance imagingA scan that takes detailed pictures of the brain or other parts of the body.
EEGElectroencephalogramA test that records the brain’s electrical activity.
cEEGContinuous electroencephalogramRecords brain activity over time, including to check for seizures.
aEEGAmplitude-integrated electroencephalogramA simplified display of brain activity used for monitoring.
vEEGVideo electroencephalogramRecords video and brain activity together to help assess events that may be seizures.
HINEHammersmith Infant Neurological ExaminationA structured exam of a baby’s movements and nervous system.
GMAGeneral Movements AssessmentAn assessment of a young baby’s spontaneous movements.
GMFCSGross Motor Function Classification SystemDescribes how a person with cerebral palsy moves, including mobility support needs.
VFSSVideofluoroscopic swallow studyAn X-ray study showing how food and liquid move during swallowing.
MBS / MBSSModified barium swallow / modified barium swallow studyAnother name commonly used for a videofluoroscopic swallow study.
FEESFlexible endoscopic evaluation of swallowingA swallowing assessment using a small camera passed through the nose.
Hospital Care and Treatment
Short formFull termWhat it means
NICUNeonatal intensive care unitA hospital unit providing intensive care for newborns.
PICUPediatric intensive care unitA hospital unit providing intensive care for infants and children.
SCBUSpecial care baby unitA unit caring for newborns who need extra support. Used in some countries; it may provide a different level of care from a NICU.
THTherapeutic hypothermiaCarefully controlled cooling treatment for eligible newborns with HIE.
ASMAntiseizure medicationMedicine used to treat seizures.
AEDAntiepileptic drugAnother term for seizure medicine. ASM is increasingly used instead.
CPRCardiopulmonary resuscitationEmergency care to support circulation and breathing when the heart stops.
NPONil per osNothing by mouth. The care team will explain how nutrition, fluids, and medicines will be given.
Care Team Members
Short formFull termWhat it means
Ped / PedsPediatrician / pediatricsA doctor, or area of medicine, focused on children’s health.
NeuroNeurologist / neurologyA specialist, or area of medicine, focused on the brain and nervous system.
OrthoOrthopedist / orthopedicsA specialist, or area of medicine, focused on bones, joints, and related movement concerns.
GIGastroenterologist / gastroenterologyA specialist, or area of medicine, focused on the digestive system.
PM&R / PMRPhysical medicine and rehabilitationMedical care focused on function, comfort, and participation. A doctor in this specialty is called a physiatrist.
SLPSpeech-language pathologistA professional who supports communication and swallowing.
SALT / SLTSpeech and language therapist / therapyTerms used in some countries for the professional or services supporting communication and swallowing.
Therapy and Everyday Skills
Short formFull termWhat it means
PTPhysical therapy / physiotherapySupports movement, mobility, strength, and participation in activities.
OTOccupational therapySupports everyday activities, such as play, dressing, eating, and school tasks.
STSpeech therapySupports speech, language, and communication. Some providers also address swallowing.
ADL / ADLsActivities of daily livingEveryday tasks such as eating, dressing, bathing, and using the bathroom.
NDTNeurodevelopmental treatmentA rehabilitation approach families may hear about. Ask about evidence for the specific techniques and goals being proposed.
ABMAnat Baniel MethodA branded movement-based approach. Its inclusion here does not establish that it is effective for HIE.
MNRIMasgutova Neurosensorimotor Reflex IntegrationA branded approach focused on reflexes. Its inclusion here does not establish that it is effective for HIE.
Communication and Assistive Technology
Short formFull termWhat it means
AACAugmentative and alternative communicationWays to support or replace speech, including gestures, pictures, communication boards, and devices.
ATAssistive technologyTools, equipment, or software that help someone communicate, learn, move, or complete activities.
DMEDurable medical equipmentReusable medical equipment, such as wheelchairs, walkers, and some home medical devices.
Braces and Equipment

An orthosis is a brace or support. The plural is orthoses.

Short formFull termWhat it means
AFOAnkle-foot orthosisA brace supporting the ankle and foot.
SMOSupramalleolar orthosisA shorter brace that supports the foot and extends just above the ankle bones.
KAFOKnee-ankle-foot orthosisA brace supporting the knee, ankle, and foot.
TLSOThoracolumbosacral orthosisA brace supporting the trunk and spine.
SWASHSitting, Walking And Standing Hip orthosisA hip brace designed to support positioning during sitting, standing, and walking.
CICochlear implantA device that provides access to sound for some people with hearing loss.
Feeding and Digestive Care
Short formFull termWhat it means
NG / NGTNasogastric tubeA feeding tube that passes through the nose into the stomach.
NJ tubeNasojejunal tubeA feeding tube that passes through the nose into the small intestine.
G-tubeGastrostomy tubeA feeding tube placed through the abdomen into the stomach.
GJ tubeGastrojejunostomy tubeA feeding tube with access to the stomach and small intestine.
PEGPercutaneous endoscopic gastrostomyA procedure used to place a gastrostomy tube with the help of an endoscope. The tube may also be called a PEG tube.
FundoFundoplication, often Nissen fundoplicationAn informal name for surgery used to reduce reflux by wrapping part of the stomach around the lower esophagus.
Surgery
Short formFull termWhat it means
SDRSelective dorsal rhizotomySurgery that cuts selected sensory nerve fibers to reduce spasticity, or muscle stiffness.
SPMLSelective percutaneous myofascial lengtheningA procedure intended to release tight tissue around selected muscles through small openings in the skin.
Early Intervention and School Supports

These terms mainly describe U.S. services. Eligibility rules and names vary by location.

Short formFull termWhat it means
EIEarly interventionServices supporting infants and toddlers with developmental delays or disabilities and their families.
IDEAIndividuals with Disabilities Education ActThe U.S. law governing early intervention and special education services for eligible children.
IFSPIndividualized Family Service PlanA written plan for an infant or toddler’s early intervention services and family support.
IEPIndividualized Education ProgramA written plan describing an eligible student’s special education, services, and goals.
504 planSection 504 planA plan providing accommodations and access for an eligible student with a disability.
ECSEEarly childhood special educationSpecial education services for eligible young children, generally beginning at age three.
FAPEFree appropriate public educationAn eligible student’s right to an appropriate public education at no cost to their family.
LRELeast restrictive environmentEducating students with disabilities alongside students without disabilities to the greatest extent appropriate.
ESYExtended school yearSpecial education services beyond the regular school year for eligible students.
ESDExtended school dayA longer school day or additional services beyond usual school hours. Use varies locally.
TCTeacher consultantA specialist teacher who supports students and school staff. The role varies by location.
FBAFunctional behavioral assessmentAn assessment of what contributes to a behavior and what support may help.
BIPBehavior intervention planA plan describing supports and strategies for a student’s behavior and participation.
School Eligibility Terms

Schools may use these terms when deciding eligibility for services. An educational category is not always the same as a medical diagnosis.

Short formFull termWhat it means
PIPhysical impairmentA school category used in some locations for disabilities affecting physical function.
OHIOther health impairmentA school eligibility category for certain health conditions that affect a student’s educational performance.
D/HHDeaf or hard of hearingTerms describing hearing differences and used by some school programs.
HIHearing impairmentA term used in some education rules and records. People may prefer “deaf” or “hard of hearing.”
DBDeaf-blindnessCombined hearing and vision disabilities that create specific communication and access needs.
ECDDEarly childhood developmental delayA school eligibility term used in some locations for young children with developmental delays.
EIEmotional impairmentA school eligibility category used in Michigan. Here, EI has a different meaning from early intervention.
SXISevere multiple impairmentsA Michigan school eligibility category involving multiple disabilities.
SLISpeech and language impairmentA school eligibility category involving speech or language difficulties.
VIVisual impairmentA school eligibility category involving vision disabilities.
CICognitive impairmentA school eligibility category used in Michigan. Here, CI has a different meaning from cochlear implant.
TBITraumatic brain injuryA school eligibility category for injury caused by an external physical force. HIE may qualify under a different category.
Other Terms You May Hear
Short formFull termWhat it means
NTNeurotypicalA term generally used for people without neurodevelopmental differences. Its meaning depends on context.
SNSpecial needsA broad term sometimes used for disability-related needs. Many people prefer “disabled,” “disability,” or a description of the specific support needed.

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