An HIE diagnosis can bring unfamiliar words, difficult questions, and uncertainty about what comes next. Whether your child was diagnosed around birth or later in childhood, Hope for HIE is here to help you understand, connect, and find support for your whole family.
You don’t need to know what to ask—or how you’re feeling—to reach out.
A network of people who know where you are, because they've been there, too.
HIE stands for hypoxic ischemic encephalopathy. It happens when the brain does not receive enough oxygen and blood flow, which can cause brain injury.
Every child’s experience is different. You can learn a little at a time.
It’s understandable to want answers right away. You deserve clear explanations about what is known, what remains uncertain, and what happens next.
Support for the questions and feelings that come with not knowing yet.
You may want someone to listen, help finding resources, or a conversation with another parent who understands.
If your child is receiving end-of-life care, or has died, you belong here too. Dedicated support is available for your whole family.
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