At Hope for HIE, we work to connect the HIE community with the researchers and clinicians shaping the future of HIE care. In the latest session of our Medical Advisory Board Educational Series, board member and HIE parent Melissa Akinlawon, MA, sat down with Dr. Mohamed El-Dib, MD, Director of Neonatal Neurocritical Care at Mass General Brigham for Children, to talk about […]
September is CVI Awareness Month! Hope for HIE was proud to exhibit at Perkins School for the Blind’s 2026 CVI Conference, “The Collective Power of Us,” held July 19–21 in Boston. Our table gave us the chance to connect directly with families, educators, and medical professionals in the CVI community from all over the world. Allison, our Program Coordinator, attended […]
Most follow-up care after neonatal hypoxic ischemic encephalopathy (HIE) has focused on motor outcomes, like cerebral palsy, epilepsy, and on some early childhood cognitive development. A new scoping review, published July 29, 2026 in the Journal of Perinatology, asks a different question: what happens to a child’s emotional health after HIE — and are we watching closely enough for it? […]
Tuesday, July 7, 2026 was a big deal for the HIE community. Hope for HIE leadership was in Washington, D.C. for the ARPA-H Making Obstetrics Care Smart (MOCS) public kick-off meeting — and we weren’t just in the room. We were driving the patient-family stakeholder perspective forward. Executive Director Betsy Pilon joined the “Collaborator Voices” session alongside Liz Powell, Founder […]
Today, the Child Neurology Society announced its 2026 award winners. Leading off with the Philip R. Dodge Young Investigator Award is Dr. Danielle Guez Barber. This is one of the highest honors a young physician-scientist in child neurology can receive — and there is no one more deserving who has dedicated their life to Hope for HIE. A HIE Parent, […]
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