Families facing hypoxic ischemic encephalopathy often turn to internet research for information about the condition and possible treatments. This tool will help families critically analyze what they are reading and if it is applicable to their child, and worth elevating to their medical team.
Sleep is one of the most talked about impacts from HIE with our global community of families, and across the spectrum of outcomes. When children don’t sleep, parents don’t either and this can impact the full family quality of life. The Neonatal Seizure Registry group has published new data about long-term outcome data after neonatal seizures, which HIE is the […]
As Hope for HIE continues to expand its impact, it has become clear that bridging the gap between clinical research and family support is critical. Families affected by HIE need representation in research studies to ensure their voices are heard, and researchers need insights that reflect real-world experiences to improve outcomes. This is where Gina Abraham’s role as Clinical Research […]
In Hypoxic-Ischemic Encephalopathy (HIE), seizures are common due to the brain injury caused by lack of oxygen and blood flow. Here are the most common types seen with HIE and their definitions: Common Types of Seizures with HIE Tonic Seizures: Characterized by a sustained muscle contraction or stiffening, tonic seizures usually cause the limbs or neck to extend or flex […]
When your child needs an EEG, it’s completely normal for them to feel anxious. The unfamiliar equipment, the idea of having electrodes attached to their head, and the pressure to stay still can all be a lot to handle. That’s why prepping for the procedure through pretend play or role-playing is such a helpful tool. By making the process more […]
Connect with families, read inspiring stories, and get helpful resources delivered right to your inbox.
Connect with families, read inspiring stories, and get helpful resources delivered right to your inbox.
