Children who survive neonatal seizures, including those caused by hypoxic-ischemic encephalopathy (HIE), face a range of challenges that can impact their long-term development. This latest published study from the Neonatal Seizure Registry explored an often-overlooked aspect of patient-family reported outcomes: sleep disorders. Recognizing that sleep plays a critical role in cognitive, behavioral, and emotional well-being, the investigators aimed to determine […]
Understanding the Role of MRI in Neonatal HIE When a newborn is diagnosed with Hypoxic-Ischemic Encephalopathy (HIE), parents often hear about a test called a MRI (Magnetic Resonance Imaging). This test is frequently used to evaluate the brain and guide care decisions, but it’s important to understand its benefits, limitations, and role in managing HIE. What is a MRI? MRI […]
We’re constantly inspired by the incredible families who find strength and hope, even in the earliest and most challenging stages of their journey. Families like the Swanson Family, who are new to the HIE community after the birth of their 2-month-old daughter, Marlee, remind us how powerful connection and support can be. Their courage in embracing hope so early in […]
Hope for HIE is built by an incredible community of families who face the challenges of this journey with strength, resilience, and compassion. What’s even more inspiring is how they go beyond their own experiences to lift others up—sharing their support, connections, gifts, and stories to create a network of hope and understanding. Every family has a powerful “why” behind […]
We’re constantly inspired by the incredible families who not only navigate the challenges of their journey but also share their stories, support, and kindness to uplift others.Families like The Aragon Family, who are actively working with their local advocacy organization to ensure that every family has access to the care and resources they need, show just how powerful community and […]
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