September is NICU Awareness Month, a time to recognize the babies, families, and care teams whose lives are shaped by their experiences in the neonatal intensive care unit. On September 26, NICU Remembrance Day, we pause to honor the babies who died in the NICU and the families who carry their memory every day. For many families affected by HIE, […]
Please join us in welcoming Mitchelle Rao, the newest member of our Peer Support Mentor team! Mitchelle is an HIE mom living in Nairobi, Kenya, and her training brings us one step closer to making sure families across the globe have someone to talk to that understands. Read on to get to know Mitchelle, her son Jed, and the path that […]
Our community shows up for families touched by HIE in ways big and small. A sign held up in a stadium. A story shared with a stranger. A call to serve as Hospital Ambassador or Peer Support Mentor. Just as often, it’s something quieter: a gift made that funds the work families depend on. Every family finds their own way […]
Recently, the Lee family attended a World Cup game in Canada, their home country. They reached out to us, wondering if this could be a good opportunity to help spread awareness of Hope for HIE and HIE to a wider audience. How could they make this experience about more than just the game? Could they try to get Hope for […]
If you were with us at this year’s Family & Community Conference, you already know Mike Medved. He’s the one who picked up a guitar and filled the room — a Pittsburgh middle school history teacher, former pro basketball player, musician, and dad of three who carries a particular kind of energy (and height) that’s hard to forget. What a […]
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