We’re proud to share one of our amazing Hope for HIE kids, William, has been named as a 2026 Champion for Children’s Miracle Network Hospitals at Orlando Health Arnold Palmer Hospital for Children! William’s Story After 41 long weeks of anticipation, Brigid and John were overjoyed to finally meet their baby boy. But William’s arrival was anything but routine. Born […]
We’re thrilled to share some exciting news at Hope for HIE—our Peer Support Mentor program continues to grow globally! We are proud to welcome Julie Ndung’u, our newest Peer Support Mentor and HIE mom. Julie is based in Kenya, strengthening our ability to support families around the world who are impacted by HIE. Adding another international mentor is a powerful […]
As the season of giving unfolded, Hope for HIE was honored to conclude 12 Days of Hope—a heartfelt reflection on the many ways our community shows up for families around the world impacted by hypoxic ischemic encephalopathy (HIE). Over twelve days, we shared powerful stories directly from our families, volunteers, and advocates—stories told in their own words. Each one served as […]
If I’ve learned anything over the last 13.5 years as a parent to a child with HIE, it’s that delays happen — in child development, in medical care, in travel, and sometimes in heating your house among other things.I was set to travel last night to the CHILDRENS HOSPITAL NEONATAL CONSORTIUM conference, as Hope for HIE was selected this year […]
November 7, 2025 our son, Malik – King , Hans – God is merciful , Mnaro – his papa….. Turned 9 and it has taken me two days to find words but I still don’t have the right ones. When his cerebral palsy diagnosis was given to us years ago our world literally crushed. The 1st doctor we saw Dr. […]
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