As the season of giving unfolded, Hope for HIE was honored to conclude 12 Days of Hope—a heartfelt reflection on the many ways our community shows up for families around the world impacted by hypoxic ischemic encephalopathy (HIE). Over twelve days, we shared powerful stories directly from our families, volunteers, and advocates—stories told in their own words. Each one served as […]
If I’ve learned anything over the last 13.5 years as a parent to a child with HIE, it’s that delays happen — in child development, in medical care, in travel, and sometimes in heating your house among other things.I was set to travel last night to the CHILDRENS HOSPITAL NEONATAL CONSORTIUM conference, as Hope for HIE was selected this year […]
November 7, 2025 our son, Malik – King , Hans – God is merciful , Mnaro – his papa….. Turned 9 and it has taken me two days to find words but I still don’t have the right ones. When his cerebral palsy diagnosis was given to us years ago our world literally crushed. The 1st doctor we saw Dr. […]
For many parents, the NICU holds moments of both hope and heartbreak. Some recall the beeping monitors and hushed tones of nurses, others remember the weight of their baby in their arms for the very first time. For loss families, these moments carry an even deeper layer of meaning—memories that are cherished, even when they are also painful. “I remember […]
When HIE enters your life, it doesn’t quietly knock.HIE comes in swinging with absent cries, unfamiliar acronyms, NICU teams moving fast.And in those first moments, hope feels simple and urgent:Let them be okay.Let this not be as serious as it sounds.Let us go home and move past this. At first, many of us define hope by outcomes.We ask what we […]
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