For many parents, the NICU holds moments of both hope and heartbreak. Some recall the beeping monitors and hushed tones of nurses, others remember the weight of their baby in their arms for the very first time. For loss families, these moments carry an even deeper layer of meaning—memories that are cherished, even when they are also painful. “I remember […]
When HIE enters your life, it doesn’t quietly knock.HIE comes in swinging with absent cries, unfamiliar acronyms, NICU teams moving fast.And in those first moments, hope feels simple and urgent:Let them be okay.Let this not be as serious as it sounds.Let us go home and move past this. At first, many of us define hope by outcomes.We ask what we […]
When I was a coach before having kids, I taught my students to celebrate every win. Plenty of other coaches disagreed with that approach, but it has served me well in parenting my child with HIE. There was a time I wasn’t sure we’d ever celebrate a birthday. The early days were full of numbers — blood gases, Apgars, MRIs […]
“With HIE, things go well…until they don’t.” As much as I wish I’d never heard of HIE, I’m forever grateful to have stumbled upon Hope for HIE’s parent support Facebook group one late and lonely night in 2013. 🫶 In the aftermath of Katie and Caroline’s birth I turned to Hope for HIE for peer support and information. 🫶 As […]
Today is the last day of HIE Awareness Month.I thought I’d spend the whole month talking about it—sharing our story, raising awareness, educating.But I didn’t.Because even a year later, some of the trauma is still too raw to put into words.Even with Heidi developing right on track…Even though you’d never know she had such a scary start.The truth is, I […]
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