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Hold onto Hope: Highlighting Family Stories throughout Awareness Month

Hold onto Hope: Highlighting Family Stories throughout Awareness Month

April 30th, 2026  | Advocacy  | Family Stories  | Hope in Action  | News

Every April, HIE Awareness Month serves as a perfect time to elevate the voices of our community and our families. By sharing our stories and experiences with one another, we help to shape research and support services, and we build a stronger community and light the path brighter for the families to come. These spotlights share a small part of […]

Remi Rocks: A Story of Hope, Connection, and What’s Possible

Remi Rocks: A Story of Hope, Connection, and What’s Possible

April 21st, 2026  | Family Stories  | News

Every April, we come together as a community to shine a light on Hypoxic Ischemic Encephalopathy. We share stories, raise our voices, and remind the world that our children are seen, valued, and full of extraordinary potential. This year’s theme is Hold Onto Hope — and we couldn’t have asked for a more perfect example of what that looks like […]

“Hold onto Hope,” an Intentional and Active Choice

“Hold onto Hope,” an Intentional and Active Choice

April 12th, 2026  | Advocacy  | Family Stories  | Hope in Action  | News

Gabrielle Ward-Collier is a mother of 5 from Saint Johns, Michigan, USA. She and her husband were introduced to Hope for HIE while still in the NICU after their daughter Ophelia’s birth in 2022. They received a notecard with website information and immediately started reading through family resources, which helped them to know they were not alone during such an […]

Hope in Action: William the Champion

Hope in Action: William the Champion

January 12th, 2026  | Advocacy  | Family Stories  | Hope in Action  | News

We’re proud to share one of our amazing Hope for HIE kids, William, has been named as a 2026 Champion for Children’s Miracle Network Hospitals at Orlando Health Arnold Palmer Hospital for Children! William’s Story After 41 long weeks of anticipation, Brigid and John were overjoyed to finally meet their baby boy. But William’s arrival was anything but routine. Born […]

New Peer Support Mentor: Meet Julie

New Peer Support Mentor: Meet Julie

December 22nd, 2025  | Family Stories  | News

We’re thrilled to share some exciting news at Hope for HIE—our Peer Support Mentor program continues to grow globally! We are proud to welcome Julie Ndung’u, our newest Peer Support Mentor and HIE mom. Julie is based in Kenya, strengthening our ability to support families around the world who are impacted by HIE. Adding another international mentor is a powerful […]

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