Recently, the Lee family attended a World Cup game in Canada, their home country. They reached out to us, wondering if this could be a good opportunity to help spread awareness of Hope for HIE and HIE to a wider audience. How could they make this experience about more than just the game? Could they try to get Hope for HIE's donate QR code up on the big screen? Could they strike up conversations with the people around them in the stands?
Our answer? YES! To all of the above! The Lee's made a sign, wrote on their shirts, and spread the word about HIE (along with fully enjoying the game!). This is exactly what Hope Makers do. They think outside the box about how their voice echoes beyond our Hope for HIE community.
Thanks for sharing your words, your advocacy, and sharing your journey with us, Lee family!
For our family, raising awareness about HIE is a quiet, but deeply meaningful mission. Though it is a reality for many newborns and expecting mothers, it remains an unexpectedly rare topic of conversation. When our daughter experienced a natural birth injury, we found ourselves navigating a situation we had never been prepared for or informed about.
By gently sharing our journey, we hope to contribute to a future where medical teams and new parents are better equipped, perhaps even seeing HIE integrated thoughtfully into standard antenatal education.
Additionally, we feel it is vital to highlight Hope for HIE because of how reliably they connect families with genuine expertise. The organization bridges the gap between daily parental care and the broader medical community, offering access to the most up-to-date research and expert insights. This data provides a sense of grounding when families need it most, and we hope that steady, collective awareness will eventually lead to a clearer understanding of the root causes behind HIE.
What we appreciate most about Hope for HIE is the strength of its peer support network. Since January of this year, our family has been navigating a very difficult and uncertain path, and the presence of this community has played a significant role in helping us find our footing again. In the beginning, my husband and I felt entirely isolated, holding the heavy assumption that our daughter’s experience was an isolated incident. Finding a space filled with families who truly understand the nuances of this journey changed our perspective entirely. We are very grateful for the steady, unpretentious support that was there for us right from the start.
Every gift helps ensure that no family faces HIE alone — through peer support, education, and connection to the research and expertise families need most. A one-time or recurring donation directly supports families navigating HIE.
Have an idea about how you can be a Hope Maker in your community? We’d love to hear about it! Contact Mary Boyle at mary@hopeforhie.org.
Thank you for helping make hope possible.
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