For many children and adults with Hypoxic Ischemic Encephalopathy (HIE), communication can look different. Some may develop speech later than expected. Others may rely on gestures, sounds, or facial expressions to connect. And for many, speaking words out loud may never be the most effective or reliable way to share their thoughts, needs, and personalities. That’s where AAC — Augmentative […]
At Hope for HIE, we work to connect the HIE community with the researchers and clinicians shaping the future of HIE care. In the latest session of our Medical Advisory Board Educational Series, board member and HIE parent Melissa Akinlawon, MA, sat down with Dr. Mohamed El-Dib, MD, Director of Neonatal Neurocritical Care at Mass General Brigham for Children, to talk about […]
Learning and attention challenges are prevalent in our community. While early identification is possible between the ages of 3-5, most children are not able to be identified until ages 5-8 because of how the brain develops, and when higher order thinking and learning begins to happen. The incidence is estimated roughly 40% of those who do not develop cerebral palsy, […]
In honor of NICU Awareness Month, Hope for HIE’s Certified Child Life Specialist, Annie Gunning, shares a favorite book and simple, meaningful ways to help big brothers and sisters feel connected to a baby in the NICU. What is a Child Life Specialist? Child life specialists are experts in child development and family dynamics, helping them navigate the emotional and […]
Back-to-school season is here. This time of year can bring up a lot of big feelings, both for kids and for the parents supporting them. For many children with HIE, whether they’re entering the school system for the first time or coming back after a long summer break, new routines, new environments, and new expectations can feel like a lot […]
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