We’re constantly inspired by incredible families, like the Niblett Family, who have turned their experience with HIE into a powerful force for advocacy and support. Not only have Romm and his family become deeply involved in the research and advocacy space in Australia, but Romm also serves as a peer support mentor, offering guidance, connection, and support to other families. […]
Understanding Blood Gases: A Guide for Parents of Babies with HIE When your baby is diagnosed with hypoxic-ischemic encephalopathy (HIE), it can feel overwhelming to navigate the medical information and terminology. One term you may hear frequently in the neonatal intensive care unit (NICU) is “blood gases.” Understanding what blood gases are and why they are important can help you […]
Hope for HIE is built by an incredible community of families who face the challenges of this journey with strength, resilience, and compassion. What’s even more inspiring is how they go beyond their own experiences to lift others up—sharing their support, connections, gifts, and stories to create a network of hope and understanding. Every family has a powerful “why” behind […]
We’re constantly inspired by the incredible families who not only navigate the challenges of their journey but also share their stories, support, and kindness to uplift others.Families like The Hartzel Family, who have relied on Hope for HIE’s Child Life programming and services to help navigate the unique challenges of their journey, show just how powerful community, connection, and support […]
This year, we are incredibly grateful to the Clapsaddle Family for sponsoring the Hope for HIE Holiday Giveaway in loving memory of their daughter, Claire. Claire, who passed away in January 2023, filled the lives of everyone around her with so much joy, warmth, and light. Their heartfelt decision to give back to the community that supported their family throughout […]
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