Raising Awareness: Full-Term NICU Awareness Month February is Full-Term NICU Awareness Month, a time to shed light on the journeys of full-term babies who find themselves in the NICU, often unexpectedly. At Hope for HIE, we know that while Hypoxic Ischemic Encephalopathy (HIE) can happen across gestational ages, it primarily impacts full-term babies. This month, we’re focusing on the unique […]
Over the last several days, many concerns have been expressed in the United States and globally about several executive actions of the new leadership administration in the United States that could negatively impact, or are impacting, the HIE community in the United States and around the world. While it is not uncommon in the first several weeks of a new […]
Navigating an HIE diagnosis can be overwhelming, and having the right support at the right time can make all the difference. From the moment of diagnosis and throughout every stage of their journey, families need reliable information, compassionate guidance, and a strong support network—no matter the impact or outcome. To ensure this, we are committed to building a team that […]
Can you believe it’s almost time for Hope for HIE’s 6th annual Hustle for Hope 5K Event? Last year, we doubled our number of participants, had several Hustle Hosts bring communities together all around the world, and grossed more than $100,000 to help our mission of improving the quality of life for families impacted by neonatal and pediatric-acquired HIE! This […]
Betsy Pilon, Executive Director of Hope for HIE, contributed to new American Clinical Neurophysiology Society clinical guidelines on indications for continuous EEG monitoring for babies at risk for neonatal seizures, recently published in the Journal of Clinical Neurophysiology. Dr. Courtney Wusthoff, lead author, wanted to ensure that patient-family perspectives were included in the guidelines, and many of the concerns shared […]
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