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A Note from Our Executive Director

December 3rd, 2024  | Fundraising  | Give Hope  | News

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Today, on Giving Tuesday, we come together as a global community to make a difference—and there’s no better time to give hope to families navigating the uncertain journey of Hypoxic-Ischemic Encephalopathy (HIE).

Every day, babies are born into the world under extraordinary circumstances, with their parents facing life-altering news. As the Executive Director of Hope for HIE—and as a parent who has walked this path—I’ve witnessed firsthand the profound impact your generosity can have on families like mine.

Nine years ago today, my son Max took his first independent steps at age three, and today he is a fiesty 12 year old in 7th grade making his impact in the world.

Along the way, we've had nothing but the most outstanding support from the Hope for HIE community, but have experienced gaps right along with everyone else -- in long-term outcome data, in clinical care, in advocacy and in research.

But we've also had an incredible community rallying behind Hope for HIE along the organizational journey to make things better for HIE families worldwide, and we have made progress at a rate that its unheard of in the nonprofit and patient advocacy world, and that is because of YOUR support.

Your support helps Hope for HIE:

• Provide FREE programs and services to over 10,000 families worldwide -- every family has access to social work, child life, peer, sibling, teen/tween and full-family support, no matter where they live in the world, allowing us to take care of some of the most marginalized and underresourced families who don't have access to these important programs otherwise.

• Provide over 1,200 newly diagnosed family support packages this year with accessible, first-langauge educational and support resources to empower families with knowledge and advocacy tools.

• Advance research paving the way for better outcomes for children with HIE -- like our newly funded HIE Registry that will be ready to take the anecdotal lived experiences in our robust community and fill critical data gaps, which will lead to improved research in both the prevention of HIE and improved quality of life.

• Bring together our local communities through our our new and expanding HIE Hospital Ambassador program, our signature Hustle for Hope in-person and virtual events, and in-person events collaborating with researchers and providers from Ireland to California to Vancouver and beyond to improve care and research for our families.

Today, we need you to continue this life-changing work.

• A gift of $25 can provide a welcome package for a newly diagnosed family.
• A gift of $50 can fund monthly support groups for parents and caregivers.
• A gift of $100 can help us develop and distribute critical educational materials for healthcare providers and families.
• A gift of $1,000 allows us to have seats at the table with international collaborators like the FDA, EMA, NIH, and the top scientists in neonatology and neurology in the world.
• A gift of $10,000 accelerates and drive patient-family centered research forward.

Together, we can turn isolation into community, fear into knowledge, and uncertainty into hope.

Please consider making your Giving Tuesday gift today by visiting HopeforHIE.org/donate. Your generosity will ripple through the lives of countless families, offering them light in their darkest moments.

On behalf of every family in our Hope for HIE community, thank you for being a source of strength and hope.

With heartfelt gratitude,

Betsy

Betsy Pilon, Executive Director

P.S. Your generosity makes a world of difference. Please visit Hopeforhie.org/donate to make your gift today. Thank you for being a part of this important movement!

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