We’re constantly inspired by the incredible families who not only navigate the challenges of their journey but also share their stories, support, and kindness to uplift others.
Families like The Hogan Family, who chose Hope for HIE for this year's My Cause My Cleats initiative, show just how powerful community and connection can be. Their commitment to spreading awareness and giving back is not only a beautiful reflection of what Hope for HIE is all about -- a reminder that every story and journey can make a difference.
Tell us a little more about the My Cause My Cleats initiative and what inspired you to choose Hope for HIE as your chosen cause this year.
My Cause My Cleats is an initiative by the NFL that takes place every December. It allows players and coaches to wear custom-designed cleats/sneakers during games to support causes that are important to them. It provides a platform to raise awareness for charities, social issues, or personal causes they care about. We decided to represent Hope for HIE due to our Daughter, Mila, who was diagnosed with HIE at birth.
Can you share a bit about your connection to HIE?
Before the birth of our daughter, neither of us had any prior knowledge or connection to HIE. Kayla's pregnancy and labor were typical, with no complications until the very end. After pushing for an extended period and multiple failed suction attempts to deliver Mila, it was decided that she would need an emergency C-section. Unfortunately, between the delivery room and the operating room, her umbilical cord prolapsed without immediate attention, and Mila was deprived of oxygen. I was able to deliver her on the operating table using forceps, which likely saved valuable time for her. She was then transferred to a higher-level neonatal hospital, where she received 72 hours of therapeutic cooling. Thankfully, Mila did not suffer any permanent brain damage, which we know is not always the outcome, and we are incredibly proud to be her parents.
What does spreading awareness for HIE and Hope for HIE mean to you personally?
Spreading awareness for HIE and supporting Hope for HIE really means the world to us. It’s about standing up for families and individuals who are navigating such a complex and often misunderstood journey. For us, it’s not just about the medical side of HIE—it’s about recognizing the emotional, social, and developmental challenges that come with it, too.
Hope for HIE is such a lifeline. They bring families together, share stories of resilience, and provide resources that really make a difference. They’re also pushing forward progress in treatment and research, which is so important. To us, it’s all about making sure people affected by HIE feel seen and supported—like they’re not alone in this. It’s about giving them the tools, information, and community they need to not just get through the challenges, but to thrive.
How has being part of the Hope for HIE community impacted your journey and/or shaped your perspective or approach to advocacy?
When Mila was diagnosed, and we didn't know the long-term effects, she was in different therapies for a little over a year. It was all so new to us, and there were so many therapies and options out there that I wasn't even really sure to begin. I think one of the biggest things during this time was connecting to others. Joining a community like Hope for HIE gave us a sense of solidarity, and connecting with other families who understand the unique challenges of dealing with HIE helped us not feel so isolated.
Would you like to share a favorite family memory, milestone, or moment that has been particularly meaningful on your HIE journey?
One of the most important lessons we have learned on this journey is that every child's milestones are unique. In the early months, I spent so much time tracking Mila's progress and stressing over every little detail. But in the end, each child follows their own path, and we couldn't be prouder of Mila. Her first words and steps will always be cherished milestones in our hearts.
Is there anything else you’d like us to include about your story, your family, or your hopes for the future, either for your family or for Hope for HIE?
Our ultimate goal is to see increased research and funding dedicated to preventing HIE and greater support and resources for families who may require long-term care. We hope to provide emotional support and guidance to another family, just as others did for us!
The holiday season may only last a few short months, but the impact of supporting Hope to HIE is long-lasting. Consider joining in and making a difference, whether it’s through donations, volunteering opportunities, or spreading awareness of HIE.
Together, we can create a legacy of hope, compassion, and support that extends far beyond the holidays, leaving a lasting mark on families who need it most.
Connect with families, read inspiring stories, and get helpful resources delivered right to your inbox.
Connect with families, read inspiring stories, and get helpful resources delivered right to your inbox.
