Melbourne, Australia: Neuren Pharmaceuticals (ASX: NEU) has commenced a formal partnership with Hope for HIE supporting development of NNZ-2591 to treat hypoxic-ischemic encephalopathy (HIE). Hope for HIE is the global organization connecting families, researchers, clinicians, biotech and more to improve the quality of life for children and families impacted by neonatal and pediatric-acquired Hypoxic Ischemic Encephalopathy, a type of brain […]
As many families in our community know, the transition back to school encompasses more than gathering supplies and setting schedules—it’s about easing the change with comfort, predictability, and connection. Most importantly, it’s about helping your child feel secure and supported, no matter what comes their way. That’s why Annie Gunning, CCLS, is sharing flexible strategies and practical tools you can […]
We are thrilled to share an exciting milestone for our community: the HIE Community Research Registry has officially enrolled its very first family at Colorado Children’s Hospital. This marks the beginning of a groundbreaking effort to better understand the long-term impacts of Hypoxic-Ischemic Encephalopathy (HIE), improve care, and drive innovation in research. For too long, families impacted by HIE have […]
Here’s something I’ve had to remind myself often: Social media is designed to show you what you’ll feel something about.The best stories.The scariest ones.The most polished, or the most tragic.Whatever pulls you in and keeps you scrolling. And when you’re parenting a child with HIE, that can be a minefield. One day, it’s a post about a miracle recovery — […]
Not every conversation needs a full birth story, MRI results, or therapy summary. But sometimes — at the park, school, family events, or the grocery store — questions come up, and it’s very common to feel anxiety, angst, grief and really all the emotions in these situations. And in those moments, it helps to have a short, practiced response that […]
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