As the saying goes, “It takes a village,” and at Hope, we have a strong one. In our latest HIE Peer Perspective session, parents from our community shared their real-world tips and personal experiences navigating school with children with HIE. From preparing for transitions and understanding IEPs to advocating for supports and fostering inclusion, their insights offer practical guidance and […]
For many parents, the NICU holds moments of both hope and heartbreak. Some recall the beeping monitors and hushed tones of nurses, others remember the weight of their baby in their arms for the very first time. For loss families, these moments carry an even deeper layer of meaning—memories that are cherished, even when they are also painful. “I remember […]
Families navigating neonatal and pediatric brain injury like HIE often face uncertainty, limited answers, and overwhelming emotion. While you search for every possible path to help your child, a growing industry of alternative and unregulated providers is waiting to capitalize on that desperation. These individuals and companies market themselves using medical-sounding buzzwords, false credentials, and emotional storytelling to promote expensive, […]
At Hope for HIE, we follow the latest research to share how science is moving the needle on preventing and improving outcomes in hypoxic ischemic encephalopathy (HIE). Recent studies highlight important progress in obstetrical care — from better ways to read fetal heart rate patterns during labor, to tools that help doctors make safer, more consistent decisions in the delivery […]
When your baby needs the NICU, it changes everything—your routines, your emotions, your expectations. Having strong support can make all the difference. One way that support comes to life is through Child Life Specialists (CCLS). They’re trained to help your baby and your family navigate the NICU experience, providing clear explanations, practical coping tools, and emotional support. From guiding siblings […]
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