As Hope for HIE continues to expand its reach and impact across the global HIE community, we’re thrilled to welcome two new team members who bring exceptional talent, experience, and heart to our mission. Mary Boyle, Program Manager Mary joins Hope for HIE as Program Manager, bringing more than 20 years of experience in nonprofit program development, fundraising, and community […]
Epilepsy and seizures are a common issue affecting about 50-60% of babies and children with HIE (hypoxic ischemic encephalopathy), a condition that occurs when a newborn or child’s brain doesn’t get enough oxygen. This can result in different types of seizures, from more common and manageable ones to rarer and more challenging forms. Having epilepsy can be worrying, but it’s […]
When Hope for HIE began more than a decade ago, it started as a small online peer group of families determined to make sense of life after a neonatal brain injury. Today, that same spirit of connection fuels a global nonprofit driving change across clinical care, research, and advocacy building awareness and comprehensive support for children and families.. In October […]
At this year’s Child Neurology Society Annual Meeting, a major seminar brought together leading experts, including patient advocacy, to talk about the importance of better screening for neonatal seizures, including the use of Continuous EEG (cEEG). Better screening ensures more information is known about a newborn’s neurological status, which often leads to different treatment paths, and even the confirmation of […]
We have a lot of swifties in our community, so to celebrate the latest album, we’ve curated a 🎶 Life of a HIE Parent Playlist (Taylor’s Version 😉): Parenting through HIE is a journey of fear, resilience, grief, love, and hope. If Taylor Swift wrote the soundtrack, it might sound like this: 🔶 Soon You’ll Get Better 🔶 Epiphany 🔶 […]
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