Here’s something I’ve had to remind myself often:
Social media is designed to show you what you’ll feel something about.
The best stories.
The scariest ones.
The most polished, or the most tragic.
Whatever pulls you in and keeps you scrolling.
And when you’re parenting a child with HIE, that can be a minefield.
One day, it’s a post about a miracle recovery — and suddenly I’m wondering if we’re falling behind. The next, it’s an article with devastating outcomes — and fear grips my chest, even if the details don’t match our story. Then it’s a reel pushing an unproven therapy that feels too good to be true — because it is.
The algorithm doesn’t care what’s true. It cares what gets clicks.
But we can pause and prioritize the truth. We can choose discernment over panic, and presence over pressure.
And when it’s too much — we can log off.
To remember who we are, not just what’s reflected back at us.
To reconnect with real life, not just a curated one.
Protect your peace. Curate your feed. Take the break.
You don’t need to be “on” all the time to be informed — or to be enough.
We know every parent has to travel this path on their own, but with the support of a community behind them. That's why we create resources to help along the way. Below you'll find a tip sheet on creating healthy social media boundaries and discerning between what's true and what's for the algorithm.
Parenting a child with HIE means searching for answers — and the internet can feel like both a lifeline and a landmine. Here's how to protect your peace and empower your decisions in a world of too much information.
Social media platforms are designed to keep you engaged — not necessarily informed. That means you’re more likely to see:
Be aware of what you're being fed — not just what you're choosing to see.
Before trusting a post or article:
Look for evidence-backed sources — not anecdotal hype.
Be cautious of:
If it sounds too good to be true, it probably is.
You’re allowed to:
Your mental health and well-being is critically important!
Bring what you see online to your child’s providers. They can:
You don’t have to navigate this alone.
Follow accounts that:
Use the CRAAP test:
You are already doing so much. You don’t need to be a medical expert, a therapist, and a misinformation detective. Take what helps. Leave what doesn’t. Ask questions. Protect your peace.
You’ve got this — and we’ve got you.
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