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A Parent’s Guide to Crafting a 30-Second Elevator Speech about HIE

August 10th, 2025  | Advocacy  | News

 

Not every conversation needs a full birth story, MRI results, or therapy summary. But sometimes — at the park, school, family events, or the grocery store — questions come up, and it's very common to feel anxiety, angst, grief and really all the emotions in these situations.

  • “Was your baby early?”
  • “Why do they go to therapy?”
  • “What’s HIE?”
  • “They seem fine — what do you mean by brain injury?”

And in those moments, it helps to have a short, practiced response that feels both honest and manageable — for you.

This is your elevator speech: a 30-second explanation that meets curiosity or confusion with clarity, and protects your peace in the process.


Why Have an Elevator Speech?

  • To reduce anxiety when questions catch you off guard
  • To advocate and educate in a way that feels natural
  • To avoid overexplaining (or underexplaining)
  • To model confident communication for your child(ren)

What to Include (Choose What Feels Right for You)

  1. The diagnosis name (optional if you prefer more general language)
    • We have found breaking it down in the following way helps people understand: Hypoxic - Lack of Oxygen, Ischemic - Restricting the flood of blood, Encephalopathy - Impacting the Brain
  2. A short explanation that’s age-appropriate or socially neutral
  3. The impact (without needing to justify or overshare)
  4. Your perspective — hope, pride, or boundaries
  5. A close or redirect (if you want to move on)

Sample Templates

Sometimes reading examples can help you develop your own. Here are some scripts that may be good starters to develop your version.

Simple & Informative:

“My child had a brain injury at birth called HIE. It affects development in some areas, so we do regular therapies and follow-up care. Every kid is different, and we’re proud of how far they’ve come.”

Neutral & Protective:

“There’s a medical condition from birth that impacts some things, so we work closely with a great team. They’re doing amazing, but we focus on their pace, not the charts.”

Empowering & Honest:

“They had a rough start and a diagnosis called HIE. It’s been a journey with lots of therapy and learning, but they’re resilient and we take things one step at a time.”

Redirect with Boundaries:

“They had a brain injury at birth, and we’ve got an amazing team supporting us. It’s a lot, but we’re good — how’s your little one doing?”


Tips to Make It Yours:

  • Practice it aloud (alone or with a trusted friend)
  • Adjust for who you’re speaking to (teacher vs. stranger)
  • Keep it flexible — you can say more or less
  • Use words that can help your children, those living with HIE and their siblings, by giving them the words to use as well, respecting autonomy and their perosnhood.

REMEMBER:

You don’t owe anyone your full story, or your child's medical information or diagnoses.
You can speak about HIE with clarity and confidence when you choose to.

Your story is valid. Your child is incredible.
And your words are powerful — even in just 30 seconds.


Need more support? We can help!

 

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