At Hope for HIE, we believe in the power of storytelling to create connection, foster understanding, and build a more informed and compassionate community. This month, we’re excited to highlight three incredible podcast episodes that dive deep into the experiences of families impacted by Hypoxic Ischemic Encephalopathy (HIE), as well as the professionals and advocates working alongside them. Each episode […]
Midwives, OB-GYNs, Nurses, Neonatologists, Child Neurologists and other specialists play a critical role in shaping the emotional experience of birth — especially when outcomes are unexpected or traumatic, such as in cases of Hypoxic Ischemic Encephalopathy (HIE). While providers can’t always prevent HIE, they can reduce the psychological harm by offering trauma-informed, compassionate, and communicative care. While communication has improved […]
Birth Trauma Awareness Week being held July 14-20 is a time to reflect on the experiences in our HIE community and beyond. We join with many global organizations in recognizing and educating about Birth Trauma. Neonatal HIE is traumatic for many reasons. Families are thrust into an often life-threatening experience for not just their baby, but also the mother, while […]
Families facing hypoxic ischemic encephalopathy often turn to internet research for information about the condition and possible treatments. This tool will help families critically analyze what they are reading and if it is applicable to their child, and worth elevating to their medical team.
When your child is diagnosed with neonatal or pediatric-acquired Hypoxic Ischemic Encephalopathy (HIE), one of the most difficult parts of the journey is learning to live with uncertainty. From the earliest days in the NICU or PICU, questions about outcomes, therapies, and development are common, and there are often no clear answers because of the nature of HIE and brain […]
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