At Hope for HIE, we believe in the power of storytelling to create connection, foster understanding, and build a more informed and compassionate community. This month, we’re excited to highlight three incredible podcast episodes that dive deep into the experiences of families impacted by Hypoxic Ischemic Encephalopathy (HIE), as well as the professionals and advocates working alongside them.
Each episode offers a unique perspective — from navigating the shock of diagnosis to building support systems and finding purpose in advocacy. Whether you're a parent, professional, or supporter, these conversations are rich with insight, honesty, and hope.
🎧 1. Baby Tribe: Navigating Hypoxic Ischemic Encephalopathy (HIE) in Newborns
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In this episode, The Baby Tribe podcast explores the basics of HIE, what it means for newborns and their families, and how early intervention, therapeutic hypothermia, and ongoing support can shape outcomes. It’s a great listen for parents in the early days of diagnosis, as well as providers seeking a family-centered lens.
🎧 2. Strung Out on Hope: Hope for HIE
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On the Strung out on Hope podcast, Michele Auxier shares her family’s HIE journey — the heartbreak, the healing, and how she’s channeling her experience into purpose-driven support and advocacy. Michele interviews Betsy Pilon sharing about the resources available for HIE families.
🎧 3. Child Life on Call: From Bedside Nursing to Butterfly Pig — Mary Jenner’s Mission
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In a heartfelt conversation on Child Life on Call, HIE mom and former nurse Mary Jenner discusses her transition from healthcare provider to advocate and entrepreneur. Her story weaves together grief, creativity, and advocacy — and highlights the critical role of child life services in supporting families after an HIE diagnosis.
Check out our Just Say HIE podcast archive - full of HIE family stories, interviews with our Medical Advisory Board members and more.
Look for more recent episodes dropping soon!
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Connect with families, read inspiring stories, and get helpful resources delivered right to your inbox.
