“How do I talk to my child about their HIE diagnosis?” is one of the most common questions we hear from parents—and for good reason. It’s a big topic, and it comes with a lot of uncertainty: How do you explain something so complex in a way your child can understand? What if they never bring it up? What if […]
As the saying goes, “It takes a village,” and at Hope, we have a strong one. In our latest HIE Peer Perspective session, parents from our community shared their real-world tips and personal experiences navigating vacation and travel with medically complex children. From choosing accessible destinations to managing medical needs on the go, their insights provide practical support and encouragement […]
The Child Neurology Society (CNS) recognizes 40 CNS members’ outstanding achievements and exemplary service who have been accepted into the prestigious Fellows of the Child Neurology Society (FCNS) program. These new Fellows will join an elite and diverse group of child neurologists who have made — and who continue to make — a positive and profound impact on national and […]
Dr. Alexa Craig Named Chair, Dr. Brian Kalish Appointed Co-Chair Hope for HIE is proud to announce exciting updates to our Medical Advisory Board (MAB) leadership and renewed strategic goals to support the organization’s growing impact in research, education, advocacy, and clinical engagement. Dr. Alexa Craig has been appointed as Chair of the Medical Advisory Board, and Dr. Brian Kalish […]
and the Hustle goes to… Wow—Hustle for Hope 2025 was one for the books! Whether you hit the pavement, strolled with your crew, or cheered from the sidelines, our community showed up in a huge way. Across the world, you helped raise awareness, funds, and most importantly—hope—for every family facing HIE. This year, we had over 1,000 registrants, hosted 13 […]
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