When we talk about long-term outcomes after HIE, motor skills often take the spotlight—but what about thinking, learning, and paying attention? Cognitive development, especially executive functioning, deserves just as much, well… attention! Dr. Melisa Carrasco McCaul from the TREES Lab at the University of Wisconsin agrees. Her team is leading a groundbreaking initiative to better define and support cognition in […]
Families facing hypoxic ischemic encephalopathy often turn to internet research for information about the condition and possible treatments. This tool will help families critically analyze what they are reading and if it is applicable to their child, and worth elevating to their medical team.
Access to mental health support and resources is critically important for families who find themselves in the NICU and PICU. Parents whose children are admitted to the NICU or PICU have a 45-50% greater incidence of mental health disorders such as PTSD, Anxiety & Depression. There also remains significant inequity for non-white, non-preemie, non-maternal patients and families in the NICU, […]
We know support isn’t one-size-fits-all, and while we often focus on parents and caregivers, our kids—both those diagnosed with HIE and their siblings—need just as much care, understanding, and connection. Over the past year, and under the direction of Annie Gunning, Certified Child Life Specialist and Grief Counselor, we’ve been listening, learning, and refining—piloting new content, gathering feedback, and adjusting […]
Today is the last day of HIE Awareness Month.I thought I’d spend the whole month talking about it—sharing our story, raising awareness, educating.But I didn’t.Because even a year later, some of the trauma is still too raw to put into words.Even with Heidi developing right on track…Even though you’d never know she had such a scary start.The truth is, I […]
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