At the end of March 2025, Neuren Pharmaceuticals publicly shared their intent to explore their current approved neurodevelopmental NNZ-2591 compound for an indication in neonatal Hypoxic Ischemic Encephalopathy. Hope for HIE has been engaged to provide patient-family input to all parts of the development process — from study design to longitudinal follow-up. “This is a very exciting time for therapeutic […]
When your baby is diagnosed with HIE, it can feel like you’ve suddenly been dropped into a world where everything is unfamiliar — a whirlwind of medical terms, acronyms, and test results you’re expected to understand on the fly. It’s like learning a completely new language overnight, all while navigating the emotional weight of the NICU. From lab values and […]
Over the last 2-3 years, HIE scientific advancement has been accelerating at a quick pace — both in finding ways to learn more to decrease the incidence of neonatal and pediatric-acquired HIE, and in therapeutic and care advancements to improve the quality of life for babies, children and families. Hope for HIE has been a pivotal part in the HIE […]
When you’re navigating the NICU journey, a handful of pivotal moments stand out — and MRI day is definitely one of them. For families facing a diagnosis of HIE, this scan often becomes a turning point. It’s the first time many parents hear in detail what parts of the brain may have been affected, and naturally, it raises big questions […]
When we talk about the roots of today’s HIE advocacy and research in the United States and wtih NIH funding, we turn to the story of Rosemary Kennedy—a young woman whose life forever changed her, her family, and in turn, the world. Born in 1918, Rosemary was the third child of Joseph and Rose Kennedy. Many experts believe Rosemary experienced […]
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