When we talk about long-term outcomes after HIE, motor skills often take the spotlight—but what about thinking, learning, and paying attention? Cognitive development, especially executive functioning, deserves just as much, well… attention! Dr. Melisa Carrasco McCaul from the TREES Lab at the University of Wisconsin agrees. Her team is leading a groundbreaking initiative to better define and support cognition in […]
Families facing hypoxic ischemic encephalopathy often turn to internet research for information about the condition and possible treatments. This tool will help families critically analyze what they are reading and if it is applicable to their child, and worth elevating to their medical team.
We know support isn’t one-size-fits-all, and while we often focus on parents and caregivers, our kids—both those diagnosed with HIE and their siblings—need just as much care, understanding, and connection. Over the past year, and under the direction of Annie Gunning, Certified Child Life Specialist and Grief Counselor, we’ve been listening, learning, and refining—piloting new content, gathering feedback, and adjusting […]
When your baby is diagnosed with HIE, it can feel like you’ve suddenly been dropped into a world where everything is unfamiliar — a whirlwind of medical terms, acronyms, and test results you’re expected to understand on the fly. It’s like learning a completely new language overnight, all while navigating the emotional weight of the NICU. From lab values and […]
When you’re navigating the NICU journey, a handful of pivotal moments stand out — and MRI day is definitely one of them. For families facing a diagnosis of HIE, this scan often becomes a turning point. It’s the first time many parents hear in detail what parts of the brain may have been affected, and naturally, it raises big questions […]
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