“How do I talk to my child about their HIE diagnosis?” is one of the most common questions we hear from parents—and for good reason. It’s a big topic, and it comes with a lot of uncertainty: How do you explain something so complex in a way your child can understand? What if they never bring it up? What if […]
As the saying goes, “It takes a village,” and at Hope, we have a strong one. In our latest HIE Peer Perspective session, parents from our community shared their real-world tips and personal experiences navigating vacation and travel with medically complex children. From choosing accessible destinations to managing medical needs on the go, their insights provide practical support and encouragement […]
We know summer camp can be a magical experience—full of connection, growth, and plain old fun. But for many of our families, the decision to send a child to camp often comes with a few extra layers to think through. Medical needs. Accessibility. Safety. Inclusion. It can feel like a lot. That’s why we invited Angela Bryan, Certified Child Life […]
As the saying goes, “It takes a village,” and at Hope, we have a strong one. Every month, our HIE Peer Perspective series brings together committed members of the HIE community to share their valuable insights into the diverse impacts and outcomes of HIE, offering firsthand experiences and guidance on navigating its various challenges.In our latest session, parents from our […]
As the saying goes, “It takes a village,” and at Hope, we have a strong one. Every month, our HIE Peer Perspective series brings together committed members of the HIE community to share their valuable insights into the diverse impacts and outcomes of HIE, offering firsthand experiences and guidance on navigating its various challenges.In our latest session, parents from our […]
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