We’re thrilled to reintroduce the 2025 SOAR program—now new and improved with a fully online experience through our Canvas platform! SOAR is a unique initiative designed to support children as they grow into their lives with HIE, helping them feel seen, supported, and connected. Developed by Annie Gunning, Hope for HIE’s certified Child Life Specialist, SOAR was created in response […]
One of the most challenging parts of navigating an HIE diagnosis is that there are many possible causes—and often, there aren’t clear answers about what caused it or how it will affect a baby or child. Dr. Monica Arroyo, a pediatric neurologist at Joe DiMaggio Children’s Hospital in Florida, shares that clinicians deeply understand how painful that uncertainty can be. […]
If you’ve ever had the chance to meet Allison Moise—whether at one of our mom retreats, in a support group, or through Hope for HIE’s peer mentorship program—you probably felt it right away: that grounded, steady presence that makes you breathe a little easier. Allison has worn many hats within our community: parent, peer, mentor, and fierce advocate. Over the […]
Advocacy isn’t just a buzzword for us—it’s about taking real action – whether big or small – to support families navigating HIE. Through Hope in Action, we’re working to raise awareness, connect families with essential resources, and push for meaningful change in healthcare, education, and policy. And no matter what advocacy looks like to you, one thing is clear: real […]
Medical procedures can be overwhelming, especially for kids. But what if there was a simple way to make those moments feel less scary and much more manageable? That’s where comfort positions come in—they’re a small change that can give them enough security and support to shift stressful situations into moments of comfort and care. We met with Annie Gunning, CCLS, […]
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