Hope for HIE’s SuperSibs program has expanded! In its inaugural year in 2024, enrolled siblings received different drops in the mail with developmentally-appropriate cohorted support packages. These contained thoughtful and curated activities, fun and unique SuperSibs swag, as well as connection to SuperSibs Support Circles hosted by Annie Gunning, CCLS, Hope for HIE’s Child Life Specialist. For 2025, Annie Gunning […]
Supporting siblings of children with HIE or medical complexities can feel like walking a tightrope. You want to ensure they feel included, understood, and supported, but with so much focus on medical care, it’s easy to wonder if you’re doing enough. You’re not alone in this—so many parents in our community have the same questions and concerns. That’s why we […]
Good oral health is about so much more than just a bright smile—it’s tied to nutrition, speech, overall health, and even quality of life. Yet, many families with medically complex children face an uphill battle when it comes to dental care: from finding a dentist who understands their unique challenges to managing sensory sensitivities, oral motor delays, and the impact […]
Navigating an HIE diagnosis can be overwhelming, and having the right support at the right time can make all the difference. From the moment of diagnosis and throughout every stage of their journey, families need reliable information, compassionate guidance, and a strong support network—no matter the impact or outcome. To ensure this, we are committed to building a team that […]
Children who survive neonatal seizures, including those caused by hypoxic-ischemic encephalopathy (HIE), face a range of challenges that can impact their long-term development. This latest published study from the Neonatal Seizure Registry explored an often-overlooked aspect of patient-family reported outcomes: sleep disorders. Recognizing that sleep plays a critical role in cognitive, behavioral, and emotional well-being, the investigators aimed to determine […]
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