Housing comes up constantly in conversations across the HIE community; how to organize the space you already have, when to renovate, when to move, and how to plan for a future you can’t fully predict. So Hope for HIE brought three HIE parents together to talk through how they’ve actually navigated it. MSW intern Kimberly Taylor hosted the session, with […]
This month, we opened the floor to the questions we hear most often from our community, the ones that come up again and again in messages, comments, and one-on-one calls. Annie Gunning, Hope for HIE’s Child Life Specialist and Grief Counselor, spent 20+ years working in a hospital child life department before bringing that same expertise into her role with […]
An HIE diagnosis doesn’t just change your child’s story, it reshapes the relationships around you. In this Peer Perspective Series panel, two HIE moms, Shayna B. and Kati L., opened up about how relationships with partners, family, medical teams, and community shifted, strained, and grew across their HIE journeys. We’re sharing the key notes from the Peer Perspective Panel, along […]
No family should have to navigate an HIE diagnosis alone. That’s the heart of our HIE Ambassador Program — connecting families with a local, experienced member of our community who understands the road ahead, because they’ve walked it themselves. Ambassadors act as the “bridge” between their local hospital and health systems and Hope for HIE’s longitudinal support, offering education, connection, and a […]
Simple Summer Activities That Support Emotional Expression, Coping, and Connection Summer doesn’t have to only include structured therapy or carefully planned interventions to be healing. Sometimes, the most powerful coping tool available to your child is already in their backyard — a bucket of water, a box of sidewalk chalk, or a pile of blocks. In this month’s Child Life […]
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