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What key factors should parents consider when choosing a camp for their child with HIE?

Finding a camp that checks the boxes on safety and inclusion takes a little extra effort, but the payoff can be worth it! Here's where to start:

• Know your child's unique needs: Consider your child's specific medical and developmental needs. Do they have cerebral palsy (CP), cortical visual impairment (CVI), sensory sensitivities, or challenges with temperature regulation? These factors can help you decide whether an outdoor nature camp or an indoor, air-conditioned setting is a better fit.

• Explore camps in your area: Start local. Look into what camps, especially those with a medical focus, are offered in your region. Some may be designed for children with specific medical conditions or complexities, while others may provide inclusive programming with accommodations.

• Tap into your care team: If your child works with a child life specialist or a social worker, ask them if they know of camps that might be a good match. Many care teams stay plugged into regional resources and can recommend programs other families have found helpful.

• Understand the camp structure: Ask: Is it a day camp or overnight? If it's overnight, how many nights? What's the age range for campers, and do they offer sessions for siblings, too? If so, do siblings attend during the same week?

• Look into the camp's medical support: One of the biggest questions is: What kind of medical staff is onsite? Are nurses or doctors available, and what is the staff-to-camper ratio? Knowing this ahead of time can bring a lot of peace of mind.

What makes a camp truly accessible and inclusive—physically, emotionally, and socially?

When we talk about camp accessibility, it's easy to focus on physical spaces—ramps, accessible cabins, and adaptive equipment. And yes, those are essential. But inclusion goes far deeper than that. True accessibility means kids feel emotionally and socially safe, too.

There's something profoundly powerful about being surrounded by peers who just get it. For kids and teens with HIE and other medical complexities, camp can be one of the rare places where they don't have to explain themselves. They don't need to feel different, left out, or "othered." They're just kids at camp—laughing, learning, playing, and belonging.

Here's what inclusive camp culture looks like:

• Shared understanding: Campers connect over shared experiences without saying a word. Whether navigating mobility aids, medical devices, or simply feeling seen—it's a space where they're understood on a level that can be hard to find elsewhere.

• Freedom to just be: Camp offers a chance to step out of everyday routines and into a space that celebrates individuality. Kids can be themselves—silly, curious, creative, adventurous—and know they're accepted exactly as they are.

• Friendship and empowerment: Campers build each other up. They motivate, encourage, and inspire one another. The friendships formed at camp often last long after the week is over—and for many kids, the countdown to next summer begins the moment they leave.

What essential safety measures should all camps have for children with medical needs?

When it comes to camp, fun, and safety go hand-in-hand, and while camps are held to clear safety standards, each one operates a little differently. Don't hesitate to ask questions—and trust your gut. Safety isn't just about protocols; it's about peace of mind for your whole family.

Here's what to look for (and ask about):

• Staff-to-camper ratio: A lower ratio often means more individualized attention and quicker response times in case of need.

• Medical staff onsite and available 24/7: Ask- Are nurses or physicians present at all times? How experienced are they with your child's specific medical condition?

• Medication management: Find out how meds are stored, who administers them, and their process for ensuring the right dosage at the right time.

• Emergency protocols: What happens if your child has a seizure, medical crisis, or needs to be transferred to a hospital? Is there a nearby hospital or on-call transport plan in place?

• Training for general staff: Are counselors and activity leaders trained to recognize signs of distress or understand your child's care plan?

What type of training do you recommend for camp staff to properly support children with disabilities, especially in medical emergencies?

Behind every great camp experience is a well-trained staff. Preparation is everything —and it starts long before the first s'more is toasted. Medical-based camps typically hold structured staff training before campers arrive. The length and depth of this training can vary depending on the type of camp:

• Short-term summer camps (1-week sessions) often conduct staff training over a weekend, immediately before campers arrive.

• More extended summer programs (8–9 weeks) generally have more extensive training, which can last two to three weeks and cover a wide range of care needs.

What does that training usually include?

• Diagnosis-specific education: Staff are often given dedicated time to learn about the medical conditions they'll be supporting that week, whether that's HIE, epilepsy, CP, or another diagnosis.

• Emergency response preparation: Staff are trained to respond quickly and appropriately across a range of situations, from seizures to allergic reactions and everything in between.

• General care basics: To support every camper's well-being, even simple things like hydration, sunscreen, and spotting signs of homesickness are emphasized.

So, when choosing a camp, don't be afraid to ask how their team is trained—and how often. A camp that prioritizes education and preparedness is more likely to create a safe, inclusive, and joy-filled experience for your child.

What qualifications do staff members typically have, especially when working with children with disabilities?

When sending your child to camp, it's natural to wonder: Who will be taking care of them? Rest assured, camp staff aren't just enthusiastic—they're vetted, trained, and supported. Before anyone earns a Camp T-shirt, they go through:

• Interviews to make sure they're a good fit for the role
• Background checks for safety
• Staff training that covers everything from daily routines to medical needs and emergency protocols

Some camps also require staff members to be 18 or 21 years old, depending on the type of camp and the level of care expected.

You may also hear the terms CIT (Counselor-in-Training) or LIT (Leader-in-Training). These are typically younger individuals getting hands-on experience. Don't worry—they're never alone with campers. They're always paired with fully trained staff members, often 21+, who guide them while ensuring campers are fully supported and safe.

The bottom line? Camps know how important it is to have the right people in place—people who are compassionate and equipped to care for kids with a wide range of needs.

Are nurses or medical staff onsite 24/7, and how is medication managed?

This is one of the most important questions to ask any camp you're considering—and every camp will have a slightly different setup. So don't be shy about reaching out and asking directly!

That said, here's what we've seen at many medically supportive camps:

• Medications are securely stored in a centralized location—often called a "med shack" or clinical area—where staff can access them as needed and follow strict protocols for administration.

• Yes, nurses are often on-site 24/7, and sometimes a physician is, too. While physicians may rotate in and out based on availability, nurses typically stay for the entire camp session.

• Each cabin may be assigned a nurse responsible for administering medications at scheduled times and checking in on campers regularly.

What should be included in a medical or emergency action plan for camp? And how do camps prepare for medical emergencies?

As much as we don't like to think about it, emergencies can happen anywhere, including camp. The good news? Many camps have firm emergency action plans in place. Feeling confident in a camp's preparedness can ease your worries—and let your child focus on what really matters: having fun.

• Camper health forms and medical history: Before camp starts, families fill out a detailed camper application and medical form. This gives the medical team everything they need to know—diagnosis, medications, allergies, seizure protocols, emergency contacts, and more.

• Staff awareness: Counselors and staff are given essential information about the campers in their care so they can stay alert to any potential concerns and respond appropriately.

• Local hospital partnerships: Many medical-based camps already have relationships with nearby hospitals. Some even list the designated hospital on their website. This helps ensure quick access to emergency care if a child needs to be transported.

• Clear communication protocols: Camps use tools like walkie-talkies or radio systems so staff can call for help immediately if a medical issue arises. The onsite medical team is looped in and ready to act quickly.

• Go-to questions: Where would my child be taken in an emergency? Who would go with them? How are parents notified?

What are some effective ways camp staff can foster inclusion and prevent social isolation?

Creating a space where every camper feels seen, safe, and included is at the heart of a great camp experience. Over just a few days, many campers go from shy strangers to trusted friends—and some count down the days until they can reunite next summer.

Here's how staff help campers connect and feel part of the group:

• Peer empowerment – One of the most powerful tools? Empowering socially confident campers to invite others in. Inclusion that starts peer-to-peer is often the most meaningful.

• Intentional training and tools – Counselors are trained to encourage group bonding and create a welcoming environment for all campers.

• First-day bonding activities – Camps often start with "get to know you" chats and icebreaker games that help campers ease in and start forming connections.

• Cabin traditions and end-of-day reflections – Many camps include structured opportunities like group activities in cabins and "lights out" chat prompts to help kids open up and share.

• Noticing and gentle nudging – If a camper is hanging back or hesitant to join in, counselors gently step in to encourage participation or suggest ways to feel more involved.

What does a typical day look like at camp, and how does this structure help with inclusion, accessibility, and fun?

Most camps follow a consistent daily schedule that helps campers feel secure and know what to expect, which is especially important for kids who thrive on routine.

Here's a snapshot of a typical camp day:

• Wake up and breakfast
• Morning activities that rotate—think games, crafts, or skill-building
• Lunch
• Cabin time or a chance to recharge
• Afternoon free time for rest or optional activities
• Getting ready for dinner
• Dinner together
• Evening all-camp activity—like movie night, talent show, dance, or carnival
• Lights out and bedtime

Rest time is built into the day, but if a camper needs extra downtime, counselors are trained to notice and will coordinate with medical staff to make sure their needs are met.

Importantly, campers are given ownership and choice throughout the day—whether that's picking which activities to join or deciding when to take a break. This helps them feel empowered and respected, making the camp experience even more meaningful and fun!

What advice do you have for parents nervous about sending their child to camp for the first time?

It's completely normal to feel nervous—parents are rarely alone in that feeling when sending their child off to camp for the first time. Angela, who has over 17 years of experience working with campers, shares that while she can't take away those nerves, she's seen countless kids arrive feeling anxious and leave feeling empowered.

She explains:

• Camps are planned with lots of love and care months in advance, with activities designed to help children feel welcomed, supported, and excited.

• Children often feel nervous at first, but once they connect with others and participate in activities, they quickly focus on the fun ahead.

• She advises families to sign their child up and let them try it out. If a child needs to come home early, that's okay—what matters most is that they gave camp a chance.

• Many parents also find that having their child at camp gives them a valuable break and peace of mind, knowing their child is in a safe, supportive environment.

Angela also recommends sending photos or care packages to campers mid-week to stay connected and boost morale.

What are the must-have items parents should pack for a child with medical or sensory needs?

Camps usually provide a detailed packing list to guide caregivers, but every child's needs are unique—so don't hesitate to ask!

Here are some tips:

• Check if the camp already provides specific items your child might need, like noise-canceling headphones or sensory tools. For example, at some SeriousFun camps, headphones are available in the dining hall for kids sensitive to loud noises.

• Let the camp staff know on the application or when you drop off your camper about any special gear you bring. Communication helps everyone stay on the same page.

• Pack all medications your child will need for the week, clearly labeled with instructions.

• Include any personal comfort items that help your child feel at ease—whether that's a favorite blanket, fidget toy, or something else.

What are good questions for parents to ask a camp director or staff before signing up?

Here's a handy list of great questions parents can ask a camp director or staff before signing up—because honestly, there are no silly questions, and getting all the info you need is important!

• Why should I send my child to your camp?
• How do you select and train your staff?
• What does a typical day at camp look like?
• What are the facilities like? Can you describe the cabins or sleeping arrangements?
• How does the staff communicate with caregivers during camp?
• What happens if my child feels homesick?
• What is the camp's cell phone policy?
• What should I pack for my camper?
• What is the staff-to-child ratio?
• Can siblings attend camp, too? If so, do they attend at the same time?

What surprises families most when their child returns from camp?

Angela says this is one of the most heartfelt questions parents can ask, and the answer often comes straight from families who've been through it. When campers come home, many parents are genuinely surprised—not just by how much their child talks about the experience, but by the deep sense of joy and confidence their child carries with them. It's common for kids to come back glowing with new stories, new friends, and a new sense of independence. In fact, many are already counting down the days until they can return next year!

She shares that from her years of experience, the impact goes beyond just a fun week away. Camp becomes a place where children feel truly seen and accepted. They find a "camp family" — a community of peers who understand them without needing a lot of explanation. This sense of belonging and connection can be life-changing for both the kids and their families.

Angela also encourages families to take advantage of the camp's year-round connection events. These gatherings help keep the magic alive and allow campers to maintain the friendships and support they built at camp. It's a wonderful way to nurture that camp spirit and remind kids they're part of a caring, understanding community — no matter the season.

What tips or recommendations do you have for parents to help them prepare their child and their child's camp staff for a safe and successful camp experience?

Here are some helpful tips and recommendations Angela shares to prepare both parents and camp staff for a safe, fun, and successful camp experience:

• Visit the camp: Touring the camp with your child before their first session helps ease nerves and make the environment feel more familiar when the big day arrives.

• Do your research: Look up camps online to learn about the programs and experiences they offer. Following their social media pages is a great way to get a real feel for the camp's vibe before you visit or send your child.

• Check for family weekends: Many camps offer family weekends in the fall or spring, where families can visit together and experience camp life. This can help your child feel more comfortable and excited about attending a more extended summer session.

• Try it once: Angela's motto is "Try it once." If the camp isn't the right fit, that's okay—but if your child enjoys it, you've found a place they'll want to come back to year after year.

• Talk to your medical team: They often have excellent recommendations for camps nearby that are experienced in supporting kids with specific medical needs.

What resources do you recommend for parents to help find and research camps for their child(ren)?

If you're considering camp for your child, these resources are a great place to start. They offer directories, guidance, and tips specifically focused on accessible and medically supportive camp experiences:

• SeriousFun Children’s Network: Founded by Paul Newman, this global network of camps is designed for children living with serious illnesses. All camps are medically supported and free of charge to families. Many offer family weekends, too.

• American Camp Association (ACA): The ACA website is a valuable resource that empowers parents to search for camps tailored to their specific criteria. You can filter your search based on camp types, goals, organizational affiliations, disabilities and other special needs, cost, and more. 

• Very Special Camps: This comprehensive online directory and search engine is dedicated to helping families find inclusive and specialized camps for children with disabilities or medical complexities across the United States. You can search for camps based on location, type of disability, age group, and specific activities.

• Hope for HIE's Summer Camp Q&A w/ Franki Bagdade: Franki Bagdade – a master’s level educator, clinical social worker, founder of FAAB Consulting and Franki Bagdade Therapy, author, and camp-inclusion extraordinaire – walks families through how to find the right summer camp.

• Hope for HIE's Summer Camp Resource Blog: This blog offers guidance on choosing safe, inclusive camps—covering medical support, staff qualifications, and the emotional benefits of camp. It also shares practical tips to help families prepare for the camp experience.