Families facing hypoxic ischemic encephalopathy often turn to internet research for information about the condition and possible treatments. This tool will help families critically analyze what they are reading and if it is applicable to their child, and worth elevating to their medical team.
For families navigating life after a diagnosis of Hypoxic Ischemic Encephalopathy (HIE), seizure management often becomes a central focus. Epilepsy is a common outcome of HIE, and while many children respond well to treatment, seizures remain a serious medical concern—especially when poorly controlled. One of the most devastating risks associated with all epilepsies is Sudden Unexpected Death in Epilepsy, or […]
Families facing hypoxic ischemic encephalopathy often turn to internet research for information about the condition and possible treatments. This tool will help families critically analyze what they are reading and if it is applicable to their child, and worth elevating to their medical team.
When your child is diagnosed with neonatal or pediatric-acquired Hypoxic Ischemic Encephalopathy (HIE), one of the most difficult parts of the journey is learning to live with uncertainty. From the earliest days in the NICU or PICU, questions about outcomes, therapies, and development are common, and there are often no clear answers because of the nature of HIE and brain […]
As Hope for HIE continues to grow and deepen its impact, one thing has become increasingly clear: connecting the dots between clinical research and family support is essential. Families navigating HIE need a seat at the table when it comes to research—not just as participants, but as partners. Plus, researchers greatly benefit from the lived experiences and perspectives that only […]
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