Families facing hypoxic ischemic encephalopathy often turn to internet research for information about the condition and possible treatments. This tool will help families critically analyze what they are reading and if it is applicable to their child, and worth elevating to their medical team.
Families facing hypoxic ischemic encephalopathy often turn to internet research for information about the condition and possible treatments. This tool will help families critically analyze what they are reading and if it is applicable to their child, and worth elevating to their medical team.
If I’ve learned anything over the last 13.5 years as a parent to a child with HIE, it’s that delays happen — in child development, in medical care, in travel, and sometimes in heating your house among other things.I was set to travel last night to the CHILDRENS HOSPITAL NEONATAL CONSORTIUM conference, as Hope for HIE was selected this year […]
Epilepsy and seizures are a common issue affecting about 50-60% of babies and children with HIE (hypoxic ischemic encephalopathy), a condition that occurs when a newborn or child’s brain doesn’t get enough oxygen. This can result in different types of seizures, from more common and manageable ones to rarer and more challenging forms. Having epilepsy can be worrying, but it’s […]
At this year’s Child Neurology Society Annual Meeting, a major seminar brought together leading experts, including patient advocacy, to talk about the importance of better screening for neonatal seizures, including the use of Continuous EEG (cEEG). Better screening ensures more information is known about a newborn’s neurological status, which often leads to different treatment paths, and even the confirmation of […]
Connect with families, read inspiring stories, and get helpful resources delivered right to your inbox.
Connect with families, read inspiring stories, and get helpful resources delivered right to your inbox.
