Here’s something I’ve had to remind myself often: Social media is designed to show you what you’ll feel something about.The best stories.The scariest ones.The most polished, or the most tragic.Whatever pulls you in and keeps you scrolling. And when you’re parenting a child with HIE, that can be a minefield. One day, it’s a post about a miracle recovery — […]
Not every conversation needs a full birth story, MRI results, or therapy summary. But sometimes — at the park, school, family events, or the grocery store — questions come up, and it’s very common to feel anxiety, angst, grief and really all the emotions in these situations. And in those moments, it helps to have a short, practiced response that […]
Families facing hypoxic ischemic encephalopathy often turn to internet research for information about the condition and possible treatments. This tool will help families critically analyze what they are reading and if it is applicable to their child, and worth elevating to their medical team.
When HIE enters your life, it doesn’t quietly knock.HIE comes in swinging with absent cries, unfamiliar acronyms, NICU teams moving fast.And in those first moments, hope feels simple and urgent:Let them be okay.Let this not be as serious as it sounds.Let us go home and move past this. At first, many of us define hope by outcomes.We ask what we […]
When I was a coach before having kids, I taught my students to celebrate every win. Plenty of other coaches disagreed with that approach, but it has served me well in parenting my child with HIE. There was a time I wasn’t sure we’d ever celebrate a birthday. The early days were full of numbers — blood gases, Apgars, MRIs […]
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