For families navigating life after a diagnosis of Hypoxic Ischemic Encephalopathy (HIE), seizure management often becomes a central focus. Epilepsy is a common outcome of HIE, and while many children respond well to treatment, seizures remain a serious medical concern—especially when poorly controlled. One of the most devastating risks associated with all epilepsies is Sudden Unexpected Death in Epilepsy, or […]
“With HIE, things go well…until they don’t.” As much as I wish I’d never heard of HIE, I’m forever grateful to have stumbled upon Hope for HIE’s parent support Facebook group one late and lonely night in 2013. 🫶 In the aftermath of Katie and Caroline’s birth I turned to Hope for HIE for peer support and information. 🫶 As […]
At Hope for HIE, we believe in the power of storytelling to create connection, foster understanding, and build a more informed and compassionate community. This month, we’re excited to highlight three incredible podcast episodes that dive deep into the experiences of families impacted by Hypoxic Ischemic Encephalopathy (HIE), as well as the professionals and advocates working alongside them. Each episode […]
Midwives, OB-GYNs, Nurses, Neonatologists, Child Neurologists and other specialists play a critical role in shaping the emotional experience of birth — especially when outcomes are unexpected or traumatic, such as in cases of Hypoxic Ischemic Encephalopathy (HIE). While providers can’t always prevent HIE, they can reduce the psychological harm by offering trauma-informed, compassionate, and communicative care. While communication has improved […]
Birth Trauma Awareness Week being held July 14-20 is a time to reflect on the experiences in our HIE community and beyond. We join with many global organizations in recognizing and educating about Birth Trauma. Neonatal HIE is traumatic for many reasons. Families are thrust into an often life-threatening experience for not just their baby, but also the mother, while […]
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