As Hope for HIE continues to grow and deepen its impact, one thing has become increasingly clear: connecting the dots between clinical research and family support is essential. Families navigating HIE need a seat at the table when it comes to research—not just as participants, but as partners. Plus, researchers greatly benefit from the lived experiences and perspectives that only […]
Methylene Blue is trending on social media claiming to be the “magic bullet” treatment for all sorts of ailments, anything and everything from anti-aging to neurological detox, highlighted from people known for promoting pseudoscience, non-licensed practitioners, and some big “wellness” influencers — but what is it? Is it safe? Effective? Applicable to HIE? What is Methylene Blue? Methylene blue is […]
“How do I talk to my child about their HIE diagnosis?” is one of the most common questions we hear from parents—and for good reason. It’s a big topic, and it comes with a lot of uncertainty: How do you explain something so complex in a way your child can understand? What if they never bring it up? What if […]
As the saying goes, “It takes a village,” and at Hope, we have a strong one. In our latest HIE Peer Perspective session, parents from our community shared their real-world tips and personal experiences navigating vacation and travel with medically complex children. From choosing accessible destinations to managing medical needs on the go, their insights provide practical support and encouragement […]
The Child Neurology Society (CNS) recognizes 40 CNS members’ outstanding achievements and exemplary service who have been accepted into the prestigious Fellows of the Child Neurology Society (FCNS) program. These new Fellows will join an elite and diverse group of child neurologists who have made — and who continue to make — a positive and profound impact on national and […]
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