Hope for HIE – Hypoxic Ischemic Encephalopathy Hope for HIE – Hypoxic Ischemic Encephalopathy

BLOG

Support for Bereaved Parents

Support for Bereaved Parents

July 7th, 2025  | Child Life Resources  | HIE Loss  | News  | Resources

Families facing hypoxic ischemic encephalopathy often turn to internet research for information about the condition and possible treatments. This tool will help families critically analyze what they are reading and if it is applicable to their child, and worth elevating to their medical team.

Coping with Uncertainty in HIE

Coping with Uncertainty in HIE

July 7th, 2025  | News  | Peer Perspective Series  | Self Care

When your child is diagnosed with neonatal or pediatric-acquired Hypoxic Ischemic Encephalopathy (HIE), one of the most difficult parts of the journey is learning to live with uncertainty. From the earliest days in the NICU or PICU, questions about outcomes, therapies, and development are common, and there are often no clear answers because of the nature of HIE and brain […]

July is Disability Pride Month

July is Disability Pride Month

July 2nd, 2025  | News

Hope for HIE – Hypoxic Ischemic Encephalopathy – recognizes and elevates Disability Pride Month in July

Neonatal HIE: The Elephant in the NICU

Neonatal HIE: The Elephant in the NICU

July 1st, 2025  | Advocacy  | News

Each year, millions of babies are born with HIE. Expected newborn bliss turns into a life-threatening medical crisis. Hypoxic-ischemic encephalopathy (HIE), a type of brain injury caused by oxygen deprivation before or during birth, remains one of the most devastating and underrecognized threats to newborns worldwide. Despite being a leading cause of infant mortality and lifelong disability, HIE receives only […]

The State of Neonatal HIE: A 10 Year Review of Global Trends

The State of Neonatal HIE: A 10 Year Review of Global Trends

June 30th, 2025  | Advocacy  | Care  | News  | Research

Neonatal hypoxic-ischemic encephalopathy (HIE) is a type of brain injury in newborn babies caused by a lack of oxygen and blood flow around the time of birth. It is a major threat to newborn health worldwide. In fact, HIE (often called “birth asphyxia”) accounts for about 23% of global neonatal deaths, and almost all of these deaths occur in low-resource […]

SHARE YOUR HIE STORY

One of the ways many HIE families work through the trauma of their journey is sharing their story to help other families who will find us in their own HIE journey. We hope you’ll take a few minutes and share yours with us. We’ll publish it to our Family Stories blog!

Share Your Story

SIGNUP

Connect with families, read inspiring stories, and get helpful resources delivered right to your inbox.

  • This field is for validation purposes and should be left unchanged.