Hope for HIE – Hypoxic Ischemic Encephalopathy Hope for HIE – Hypoxic Ischemic Encephalopathy

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Navigating Dyskinetic Cerebral Palsy: Key Takeaways

Navigating Dyskinetic Cerebral Palsy: Key Takeaways

May 8th, 2025  | News  | Peer Perspective Series  | Resources

As the saying goes, “It takes a village,” and at Hope, we have a strong one. Every month, our HIE Peer Perspective series brings together committed members of the HIE community to share their valuable insights into the diverse impacts and outcomes of HIE, offering firsthand experiences and guidance on navigating its various challenges.In our latest session, parents from our […]

Navigating Therapeutic Trends: Key Takeaways

Navigating Therapeutic Trends: Key Takeaways

May 6th, 2025  | News  | Peer Perspective Series  | Resources

As the saying goes, “It takes a village,” and at Hope, we have a strong one. Every month, our HIE Peer Perspective series brings together committed members of the HIE community to share their valuable insights into the diverse impacts and outcomes of HIE, offering firsthand experiences and guidance on navigating its various challenges.In our latest session, parents from our […]

Long-Term Cognitive Outcomes and Virtual A²

Long-Term Cognitive Outcomes and Virtual A²

May 5th, 2025  | Advocacy  | HIE Education  | Hope in Action  | MAB Q&As  | News  | Research  | Resources

When we talk about long-term outcomes after HIE, motor skills often take the spotlight—but what about thinking, learning, and paying attention? Cognitive development, especially executive functioning, deserves just as much, well… attention! Dr. Melisa Carrasco McCaul from the TREES Lab at the University of Wisconsin agrees. Her team is leading a groundbreaking initiative to better define and support cognition in […]

Family Activities for Remembrance

Family Activities for Remembrance

May 4th, 2025  | Child Life Resources  | HIE Loss  | News  | Resources

Families facing hypoxic ischemic encephalopathy often turn to internet research for information about the condition and possible treatments. This tool will help families critically analyze what they are reading and if it is applicable to their child, and worth elevating to their medical team.

May is Mental Health Awareness Month

May is Mental Health Awareness Month

May 2nd, 2025  | Advocacy  | Care  | News

Access to mental health support and resources is critically important for families who find themselves in the NICU and PICU. Parents whose children are admitted to the NICU or PICU have a 45-50% greater incidence of mental health disorders such as PTSD, Anxiety & Depression. There also remains significant inequity for non-white, non-preemie, non-maternal patients and families in the NICU, […]

SHARE YOUR HIE STORY

One of the ways many HIE families work through the trauma of their journey is sharing their story to help other families who will find us in their own HIE journey. We hope you’ll take a few minutes and share yours with us. We’ll publish it to our Family Stories blog!

Share Your Story

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