Melbourne, Australia: Neuren Pharmaceuticals (ASX: NEU) has commenced a formal partnership with Hope for HIE supporting development of NNZ-2591 to treat hypoxic-ischemic encephalopathy (HIE). Hope for HIE is the global organization connecting families, researchers, clinicians, biotech and more to improve the quality of life for children and families impacted by neonatal and pediatric-acquired Hypoxic Ischemic Encephalopathy, a type of brain […]
Big or small, new experiences can feel overwhelming for kids—especially when it comes to medical tests or hospital visits. One way to help is by creating a coping plan. What is a Coping Plan? Think of it as a personalized guide that highlights what helps your child feel calmer, safer, and more in control when things feel stressful or tough. […]
The NICU is a place no parent expects to be, yet for many families in our community, it’s where their journey with HIE begins. Those early days can bring uncertainty, questions, and unexpected challenges, and the experience can feel overwhelming at times. NICU Awareness Month is an opportunity to recognize these experiences, honor the resilience of families, and highlight what […]
As many families in our community know, the transition back to school encompasses more than gathering supplies and setting schedules—it’s about easing the change with comfort, predictability, and connection. Most importantly, it’s about helping your child feel secure and supported, no matter what comes their way. That’s why Annie Gunning, CCLS, is sharing flexible strategies and practical tools you can […]
We are thrilled to share an exciting milestone for our community: the HIE Community Research Registry has officially enrolled its very first family at Colorado Children’s Hospital. This marks the beginning of a groundbreaking effort to better understand the long-term impacts of Hypoxic-Ischemic Encephalopathy (HIE), improve care, and drive innovation in research. For too long, families impacted by HIE have […]
Connect with families, read inspiring stories, and get helpful resources delivered right to your inbox.
Connect with families, read inspiring stories, and get helpful resources delivered right to your inbox.
