Every April, we come together as a community to shine a light on Hypoxic Ischemic Encephalopathy. We share stories, raise our voices, and remind the world that our children are seen, valued, and full of extraordinary potential. This year’s theme is Hold Onto Hope — and we couldn’t have asked for a more perfect example of what that looks like […]
Every April 20th, we come together as a community to honor and remember the children lost to HIE too soon and the families who carry them forward every day. In our recent Child Life Q&A we sat down with Annie Gunning, Certified Child Life Specialist and Grief Counselor, for a conversation centered around remembrance — and the grief that lives […]
Gabrielle Ward-Collier is a mother of 5 from Saint Johns, Michigan, USA. She and her husband were introduced to Hope for HIE while still in the NICU after their daughter Ophelia’s birth in 2022. They received a notecard with website information and immediately started reading through family resources, which helped them to know they were not alone during such an […]
At Hope for HIE, one of the questions we hear most often from families is: What will my child’s life look like when they grow up? It’s one of the hardest questions to answer — and until recently, one of the least studied. A new paper published in the journal Neuropediatrics takes a meaningful step toward filling that gap, not […]
HIE can cause autism at up to 44% higher incidence than neurotypical babies and children, and children with HIE who don’t have motor impacts were 6x more diagnosed than those with motor impacts. HIE is a SPECIFIC cause/etiology of autism. Others include genetic, metabolic, prematurity, structural brain anomalies, toxic shock, infection, inflammatory disease and traumatic injury, as well as environmental […]
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