Many children in the HIE community undergo surgical procedures — sometimes several over the course of their lives. And yet, for most families, anesthesia can feel overwhelming or like a mystery. What exactly happens before, during, and after surgery? Who is on the team? And how do you prepare a child with HIE for what’s coming? In our recently streamed […]
Hope for HIE families, researchers, clinicians, and advocates from around the world came together, online and in-person, for the 2026 Family & Community Conference, held April 24–26 at the Hyatt Regency Boston. Themed around connection, support, and science, the hybrid event welcomed the full spectrum of the HIE community — from newly diagnosed families and seasoned advocates to leading neonatologists […]
Hypoxia Included as FY26 CDMRP Peer Reviewed Medical Research Program Topic Area The Congressionally Directed Medical Research Programs has included Hypoxia as a Fiscal Year 2026 topic area under the Peer Reviewed Medical Research Program, creating a solid federal funding opening for HIE research and related neonatal and pediatric studies focused on hypoxic injury. The Peer Reviewed Medical Research Program, or PRMRP, supports […]
We are thrilled to announce the addition of three remarkable individuals to the Hope for HIE Board of Directors: Brady Crandall, MBA, Shaun Venable, MS, and Melissa Akinlawon, MA. Each brings a unique combination of lived experience within the HIE community, professional expertise, and a deep commitment to our mission of awareness, advocacy, education, research, and support for families affected […]
We are thrilled to announce the newest additions to Hope for HIE’s Medical Advisory Board (MAB), bringing incredible depth, expertise, and heart to our growing multidisciplinary team. These seven clinicians, researchers, and advocates represent disciplines we have long sought to fill — from obstetrics and maternal-fetal medicine to neonatal nursing, neuropsychology, and beyond. We are so grateful for their commitment […]
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