While epilepsy and cerebral palsy get far more attention as noted outcomes from HIE, the prevalence of learning, attention and behavioral challenges, especially for those who have experienced a more mild outcome from HIE, are a significant burden that need more attention and follow-up care.
They walked. They talked. They hit the milestones — and somewhere along the way, you were told they were doing great. And then, often years later, something else surfaced. Trouble with memory, attention, or organization. A short fuse and big emotions that didn’t match the moment. Struggles with planning, transitions, or keeping up at school — even though, on paper, […]
In honor of Father’s Day, we’re spotlighting Motti Eisenbach — HIE parent, generous donor, and one of our newest Peer Support Mentors. Some moments can split a life into before and after. For Motti Eisenbach and his wife Rena, that moment came in April 2024, when Rena gave birth to their daughter Temima at just 31 weeks and 5 days following […]
We’re so excited to welcome Laura Hébert to our Peer Support Mentor program! Based in Canada, Laura is an HIE mom and speaks both English and French. We’re thrilled to continue to strengthen our ability to support families around the world who are impacted by HIE. Learn more about Laura, her family, and her journey as an HIE parent. Laura’s […]
Parenting a child with HIE is one of the most emotionally complex journeys a family can face, and yet conversations about parental mental health are still too rare. In this Peer Perspective Series panel, three HIE parents opened up about their own mental health journeys with honesty and vulnerability. Follow along as we highlight the key takeaways that Kat, Ravi, and Kori […]
Connect with families, read inspiring stories, and get helpful resources delivered right to your inbox.
Connect with families, read inspiring stories, and get helpful resources delivered right to your inbox.
