March is Child Life Month, and we celebrated by sitting down with Hope for HIE’s Certified Child Life Specialist and Grief Counselor, Annie Gunning, for a Child Life Q&A. Annie answered some of the most common questions families have about child life support — both inside the hospital and right here at Hope for HIE. Missed the live Q&A? No […]
Every March, Kidney Awareness Month shines a light on the vital role kidneys play in overall health. For families and clinicians connected to hypoxic ischemic encephalopathy (HIE), kidney health is an important but often less discussed part of the story. While HIE is primarily known as a type of newborn brain injury caused by reduced oxygen and blood flow around […]
Cerebral palsy is one of the more common diagnoses from HIE. While HIE-acquired cerebral palsy only accounts for roughly 10-15% of all cerebral palsy causes, roughly 40% of children diagnosed with HIE will go on to be diagnosed with cerebral palsy.
We are sharing all about the connection between HIE and cerebral palsy during March, and sharing resources for our community to learn more.
On February 5–6, 2026, leaders from the FDA, academia, industry, and advocacy convened for ADEPT 10: Addressing Challenges in Neonatal Product Development – Leveraging Rare Disease Frameworks. The workshop focused on overcoming barriers in neonatal drug development — from ethical complexity and small populations to innovative trial designs, real-world data, and regulatory pathways. Importantly, HIE was recognized as a key […]
Hope for HIE was honored to participate in the 2026 International Newborn Brain Conference (INBBC)—a global gathering of clinicians, researchers, industry partners, and advocates committed to improving outcomes in neonatal brain injury. It was deeply meaningful to have such extensive representation from Hope for HIE’s staff, Board of Directors and Medical Advisory Board—including Dr. Danielle Barber (Board of Directors & […]
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