In our recent Child Life Q&A, we met with Hope for HIE’s Child Life Specialist and Grief Counselor, Annie Gunning, to talk about a powerful, simple tool for connection: infant massage. For families who have experienced a NICU stay, medical trauma, or disrupted early bonding, this conversation offered reassurance and hope. Below are the key takeaways — plus details about […]
February is Children’s Dental and Oral Health Awareness Month, a timely reminder that oral health is deeply connected to overall health, development, and quality of life. For families impacted by Hypoxic-Ischemic Encephalopathy (HIE), dental care can feel like just one more item on an already full medical list. But the mouth is not separate from the body, it can be a source […]
February is Heart Month and Congenital Heart Defect Awareness Month. As with every other system in the body, Neonatal and Pediatric-acquired Hypoxic Ischemic Encephalopathy (HIE) can also impact cardiovascular health and function, and there’s also an overlap with Congenital Heart Defects and HIE (as well as other types of brain injury). HIE can negatively impact the cardiovascular system, either transiently […]
Registration is officially OPEN for Hope for HIE’s 7th annual Hustle for Hope 5K Event! This event is more than a race. It is a fundraiser that directly supports the programs of Hope for HIE, advancing awareness, advocacy, education, research, and support for children and families impacted by HIE around the world.We invite our families, community members, NICUs, PICUs, and […]
When your child’s life is shaped by medical complexity, childhood can too easily become defined by appointments, procedures, and precautions. At Hope for HIE, we believe every child deserves the chance to experience the magic of summer camp: friendship, laughter, and the simple joy of just being a kid. For children with HIE and other complex medical needs, that magic […]
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